May 262008

Meeting with the LLMD went pretty well. He said he was happy that my vision problems were not optic neuritis, but he did not go into why. I was not much in the mood for there is a better side of this then, but I need to ask at the next appointment.

We started by going over the MRI report, and discussing the visit with the neurologist. He agreed with me holding off on the Rebif, and definitely agreed with no to the steroids. He said that everyone who has come to him who previously had a MS diagnosis has gotten better. He added that there are definitely some people being treated for MS but have Lyme; but that is not really news.

The majority of the visit focused on adding IV Rocephin to the treatment mix. His ideal for the Rocephin is 2g twice a day for 4 days and then off for three days for six months. I did three months with a PICC line so six months can’t be that much worse. This will be in addition to the Minocin and the Flagyl that I am currently taking.

Since I see a doctor out of state the bigger issue was that I needed to get a local doctor to oversee my home heath, etc. My family practice doctor, the one who initially started running the tests for me, graciously agreed to oversee my local care.

To be continued …

Jun 062007

Image of the "PICC" line in left arm
Certainly long overdue the treatment has now begun, and while I may not find IV antibiotics the ideal it is how we are proceeding for now. A “PICC” line was inserted, but only 25cm worth (so not a true PICC line that goes almost to the heart), and so the line ends about at my shoulder. The line didn’t hurt going in, but ripping that tape off when they change the dressing does hurt (I should have shaved my arm first!). The first round of antibiotics is 2g of Rocephin. The doctor said he modulates the antibiotic about every two weeks. I get to go home with 6 days worth, and on the seventh day I have to go back for a dressing change and then to restock my supply. I don’t really know what to expect as far as Herx reactions, but so far I feel fine (but it is still pretty early in the treatment).