Apr 122015
 
Eriksgirls picture of me showing Anisocoria

Eriksgirls picture of me showing Anisocoria

It is not a tumor! πŸ˜‰

Eriksgirl has uses my eyes as her personal gauge to see if I am near a seizure. Maybe that happened for her after my last seizure where my pupils were very different sizes, like someone with a concussion and this was before I hit the floor.Β  I told her they were not off by much when she showed me the picture.Β  She exclaimed they should be equal. πŸ™‚

What I do know is that the Anisocoria (different pupil sizes) is relatively new for me, and not something I have had my whole life. This would make the Anisocoria most likely caused by Lyme, or MS. I think for either of these it would point to optic neuritis but my eyes are checked regularly (not to say that optic neuritis could not be missed). Other than that I have no great ideas other than a tumor, which I am pretty sure it is not that (recent MRI :-). (or I keep getting concussions, might explain my repeating myself so often to the kids)

I guess it will be something to discuss at my next neuro exam. I cannot remember the last time he examined my eyes. Fortunately, my optometrist has a really nice computer/camera that takes a picture of the back of my eye to look for problems. He is not a doctor, but he regularly checks the optic nerve.

Nov 292014
 

Glass of MilkSo I was browsing the web and I came across an article discussing a “relationship” between drinking cow’s milk and MS. This whole study sounds like it was funded by vegans/vegetarians. On a plus side your eating of cheese, butter, and yogurt is fine.

On a personal note I probably drink 32 ounces (.95 liters) of 2% milk most mornings. In fact if we had whole milk I would choose that, but Eriksgirl picks up the milk. πŸ˜‰ I do not see any adverse affects from my milk drinking and find it to be a quick tasty breakfast.

When I get called in by a market research group it is usually to talk about MS in some specific context, but a few weeks ago I was called in to discuss our family’s milk purchasing habits. It reality though the study was about a drink I deemed it like Yoo-hoo which isn’t 100% milk but they said is better than milk and taste just like it. I told them to put Yoo-hoo on my cereal it would need to be significantly cheaper because I am too used to regular milk. Then a couple days after the study Eriksgirl points me to a story about Coke going into the “dairy” business, but their “Milk” will cost twice as much. I am not a fan of skim milk but I am sure I will probably give it a try for fun. Maybe Coke can make their Milk beverage MS friendly. πŸ™‚

Jul 062013
 

Because I have been diagnosed with Multiple Sclerosis I am regularly recruited to MS studies for my opinion. If it is a drug which they do not provide a name they always call it Product X. This was another Product X study on a new drug. During the hour long one on one interview we discussed marketing phrasing for the new drug. All of phrasings were bad and they really liked to use “New technology….” has brought a better drug. I discussed there is a disconnect between technology and my health, drugs, etc. but I would lay money it is what they use. Continue reading »

Mar 302013
 

ChrisGMy coworker Chris has been biking the MS 150 for years now. I received an email the other day that he is again doing the ride and seeking donations. If you are looking to give to the National MS Society I recommend you donate through Chris. I am thankful to Chris and the other bikers for their efforts. Safe travels.
You can click here to quickly contribute or here is an excerpt from the email he sent me: Continue reading »

Mar 252013
 

I was trying to think of a word that best described MS/Lyme and I think the word is inexplicable. For me, years ago, life was going along normally and then out of nowhere big problems started. I tried to write them off, and some went away. But much like the old adage problems that go away by themself will also come back by themself. So now as much as life is full of inexplicable things I now have the MS/Lyme which is a constant on and off for no reason. It is better, but not gone.

While not new news the weirdest thing, other than getting MS, was when Katja was β€œupright” again. I like to hear inexplicable stories of things going good for a change.

Mar 132013
 

I see all the new articles that they have found a new link to what causes MS: salt. Sadly super sizing the fries causes more than high blood pressure and cholesterol issues. πŸ˜‰ I read the article, and I should get an award for not going to sleep, and still fail to fully see the issue. A T cell that helps regulate your sodium levels increases with heavier salt intake. Sounds like the body working normally and well, but in the “mouse model” it was bad. If they would have just said that a bad diet is bad for you I could go with that, but linking it to an essential chemical for the body has jumped the shark.

I have noticed two other correlations with Multiple Sclerosis: Breathing and Water Consumption. Both of these happened in 100% of people with MS. This should also be investigated for possible links to the disease.

Feb 132013
 

As I was trying to go to sleep the other night with a MS headache I was wondering if that is the most common symptom. I have written about headaches (9 years ago – time flies) before and this one fit the pattern. Like other people I get normal headaches which are usually sinus or caffeine I guess these are just a bonus. This last headache was a good example of a MS headache because it repeated for days and only affected my right temple which I believe is a first for me. Caffeine headaches for me are always both temples. The most common type of MS headache for me is one affecting the parietal area, back of the head. I have had a repeated lesion in the back of my brain so that seems to makes sense. This last headache was low on the pain scale, maybe a 3, but it was not compatible with sleep because apparently I am a pansy. Fortunately ibuprofen has always taken care of the headaches.

Nov 202012
 

Back in February I was contacted by someone wanting to discuss my MS condition and when I was born, etc. In my post I noted that Ron the astrologer predicted a flare up, with no personal information from me. Maybe he is psychic too. πŸ˜‰

Apparently per this article Ron was onto something. Neurologists now links birth month to your risk for getting MS. Paraphrasing the article if you are a Aries or Taurus you are in trouble, but if you are a Scorpio or Sagittarius you should be fine. No doubt some time soon your neurologist will use Tarot cards for treatment and diagnosis. I eagerly await my reading.

Less scandalously this is just another Vitamin D study and linking it back to pregnancy. I am all for blaming my parents but this is a bit of old news.

Nov 172012
 

For a few days I had pain in the balls of my left foot. I had this type of pain back in 2007 which my LLMD, at th\e time, blamed on gout. No surprise the antibiotics/antimalarials fixed the problem with no diet change. The pain had never come back until recently. Even though it had been years I immediately wondered if it was MS or Lyme. Probably just a weird pain. I am sure most people have weird pains occasionally. Having been diagnosed with a chronic problem I think my natural inclination is to “worry” more over normal pains/things. Maybe that is another complaint I have with the diagnosis. Nothing can be normal again.

Aug 262012
 

I think Canada study brings up a great question because in hindsight are interferons even a rational treatment? What are the interferons treating? Interferons are not the best understood thing in the body, but importantly they are already made in the body. Why when we are already making interferon b1a do we want to inject more? And if I recall it made out of Chinese hamster ovary cells. I was never checked to see if my interferon levels were low and needed boosting with a shot. Furthermore, in the body interferon is made as needed as an immune response to viruses, etc. Is the contention with taking the interferons that I have an infection that they will fixed. I certainly know the injections certainly never kept me from getting sick with other “infections.” Continue reading »