Aug 202012
 

After years of not getting any comments or emails about Mannatech or Ambrotose I got an email a few weeks ago. Rather than a sales pitch it was a take down notice on some of my posts. That is a fist. Of course I never advocated the use of the products so the emails are SPAM or script junk. If they are scripts searching the web I would have also have expected Mannatechโ€™s Ambrotose Saved My Soul to be included in the take down notice. ๐Ÿ˜‰ Against my better judgment I replied to two of these emails with no response. No doubt I will continue to get these junk emails.

For a product that could supposedly cure everything Ambrotose certainty came at a great price. Of souse they can not legally say that which had to hurt sales. What does the product do other than cure everything? Furthermore, while I am not going to take their product because I think it is junk feel free to give it a try. I do not think it will hurt you.

Transcript of the email below.


8/1/12
From: jbishop@mannatech.com
CC: mannatech_enforce@opsecsecurity.com

Subject: Cease and Desist

RE: Impermissible Use of Health Claims Attributed to Mannatech Products
http://blog.thesmithlife.com/?p=254
http://blog.thesmithlife.com/?p=340
http://blog.thesmithlife.com/?p=563

Mannatech, Incorporated (“Mannatech”) routinely reviews the internet to insure our products are being properly represented to the public. Health claims which go beyond the specific claims approved for Mannatech products and/or claims which state, suggest or imply Mannatech products cure, treat, mitigate or prevent disease are against Mannatech policies.

Your website (identified above) contains statements which are contrary to Mannatech”s policies. You are hereby requested to immediately remove from your website any statement which (i) states, suggests or implies Mannatech nutritional products prevent, treat or cure disease, (ii) states, suggests or implies Mannatech nutritional products are a substitute for a doctor”s standard of care, and/or (iii) otherwise violates Mannatech”s Associate Policies & Procedures.

If you have any concerns or questions relating to the issue raised herein please contact the undersigned at jbishop@mannatech.com. We further request that you contact the undersigned within five (5) business days from the receipt of this letter to (i) confirm the offending statements/representations have been removed from the website and (ii) confirm you will refrain from making such representations in connection with Mannatech nutritional products in the future.

The removal of this type of impermissible information from the internet is of great importance to protect Mannatech”s right to conduct business. Mannatech is prepared, if necessary, to take legal action to secure your immediate compliance with this demand, including litigation seeking injunctive relief, damages and attorney fees as allowed under Texas law. It is our hope, however, that you now fully appreciate our concerns and will take prompt action to avoid escalating the matter further.

We thank you in advance for your immediate attention and cooperation, and again stress the importance of complying with our demand and contacting the undersigned as requested herein.

Respectfully,

The Mannatech Legal, Ethics and Compliance Department

Note: Nothing contained in this letter shall be construed as a waiver of any rights Mannatech, Incorporated has at law or in equity, all of which are expressly reserved.

Sep 262007
 

I detest writing about Glyconutrients, but they seem to keep coming up. Unfortunately, there was a recent comment made here, and my reply right below.

Interesting timing but there was a good comment buried deep in the blog that occurred right after the above drama (here is the link to the comment if the glyco drama interests you): glyconutrients is a made up term. After doing a quick search I think there was a typo in the doctor she recommended. I think she meant Dr. Ray Sahelian, and his site is here: http://www.raysahelian.com. After a quick look it seems like a pretty good herbal site. Thanks to Dr. Megan for her comment and reference.

Apr 092007
 

Everything is pretty stable at the moment as I continue my wait to get into some doctors. I may never understand the mandatory wait when I am sick now. I guess my sickness isn’t going anywhere so I can stand to wait. Ugh. I currently have 3 appointments (only one local) with possibly two more to be added (one of those is “just” a long car drive away).

On a side note my continuing research into Lyme seems to indicate that alternative treatments will play a much larger role than they did with Multiple Sclerosis. Realizing I probably come off anti-alternative treatments with my continued Ambrotose/Glyconutrient bashing (which, by the way, I never heard back from that one email asking how glyconutrients can cure Lyme); I do think that alternative treatments have an important place. For MS I was (and I still am) taking Evening Primrose Oil (EPO) and Fish Oil (better than eating fish; yuck!). I’ll write more on the more extensive alternative treatments I choose after talking to some doctors to see how they will best complement the treatment.

 

Mar 302007
 

As much as I would prefer not to go to PA (as MDMHVONPA suggests) I now have two doctors appointments up there. It is certainly easier to find a Lyme doctor in tick country. Plus, going up there again will give the ticks an opportunity to get the other 4 members of the family. ๐Ÿ˜‰ I have also found a local doctor, and maybe one in LA. All that is left is to wait for the appointments, and maybe think of a couple of more questions.

On a side note I got another email about Ambrotose. It even started “I saw that you welcomed some emails about the topic, so i thought I’d take you up on it.” I don’t know where she got that impression since I’ve gone to the effort of disabling comments on most of the Ambrotose posts. I am at least glad that the sales-pitch was re-engineered to address Lyme: “However, scientifically there is a ton of evidence that points to cellular issues as being the starting block of most diseases. From Cancer to Lyme, and nearly everything in between what happens is a breakdown in cellular communication.” They must really train them well that they have an expert knowledge in Lyme, Multiple Sclerosis, etc. I guess I will have to get some additional specifics about how it helps restore “cellular communication” to cure Lyme. Personally, I am waiting for the Mannatech Fountain of Youth Juiceยฎ.

 

Nov 212005
 

ย and I don’t like any of them. OK, so that’s a bit of an exaggeration, I kinda liked the Sharpie sniffing (but it was awkward going around with my black-tipped nose) โ€“ unfortunately it didn’t help much with the MS. Also, I haven’t tried LDN nor Mannatech’s Ambrotose. ๐Ÿ˜‰

I guess the bottom line is that I am growing tired of the Rebif injections. The big problem is that I am doing so well. Yeah, I have the occasional exacerbation, but they have all been relatively minor. Lately, I have been averaging about 2 injections per week up until about a month ago. I am now averaging about 1 injection per week, and I just took off an entire week (a new record and with no ill Rebif effects). I suppose I am doing well as far as the 18 month mark when a lot of people quit (I am at 28 months). I do wonder if the Rebif is helping or if I just am in a lull. I’m not quite ready to quit, though it is growing increasingly hard to take. Hopefully there will be a good oral medication available soon.

Oct 252005
 

Apparently I have been wrong this whole time about Glyconutrients. If only Stacy would have commented earlier I would have avoided all of these embarrassing mistakes about Glyconutirents and their importance for Multiple Sclerosis. I simply cannot refute her rock solid logic of: “You absolutely cannot refute that people with MS have problems with their glycoproteins.” and “It’s nutritional not medicinal.” Regardless consider this my official change of position: I will not longer be taking Rebif or any other drug and will switch completely to Mannatech’s Ambrotose. I am sorry for the confusion and skepticism as well as slandering glyconutrients and their health benefits. I urge everyone else to take this critical dietary supplement too!!! I will soon post a link on my site so you can order your supplements directly from me since I will be a registered Mannatech representative.


I wrote the previous part yesterday, but there was an interesting development today. I was in company sponsored CPR class today (would I really provide life saving activities on someone who causes me so much work, hmmmm). The instructor was really nice and did a great job. While I was taking my test I noticed that his canvas bag was embroidered with Mannatech. Definitely got a laugh as I thought: oh my gosh they are following me to work! I hung behind after class to ask him about the bag, and he confirmed that he does sell the stuff. While he did extol their virtues (the exact party line I’ve heard a 100x’s) he said he doesn’t really push the stuff โ€“ even though it works so great for him. He said he has a very successful business and doesn’t need to sell the stuff, but does to give it to friends. I told him I’d been presented many times with their products, but left off the reason (MS). He tacked on somewhere in the conversation that they work really well on 11 autoimmune diseases (I didn’t volunteer that I had one). Regardless, I just listened and smiled since I approached him and he was nice and not pushy. Overall, I have no problem with the Mannatech people except that they go out of there way to pester me โ€“ go figure. ๐Ÿ˜‰

Aug 302005
 

Sometimes, I guess out of boredom, I decide to go a few rounds with someone pimping their glyconutrients. I do not post personal emails I get, but Unsolicited Commercial Email doesn’t get that protection. Maybe I should also do my own Captain Kirk vs. Nigerian 419 Scam sometime! ๐Ÿ˜‰ Comments in red.


From: Lee Zelina
Subject: Hi Erik

Hi Erik,

Have you tried Glyconutrients for your MS? I have been educating myself about these essential sugars for over a year. I highly recommend that you get the info and give them a try. I could give you a lot of info and get you in contact with someone who could answer specific questions and offer recommendations. I have personally seen significant improvements in the health of several of my friends and even my dog after taking the products.

Regards,
Lee
(Does he really give his dog these very expensive pills, or is there a new product line that I am unaware of? Multiple Sclerosis and dog health are pretty similar so I can see why maybe he is a little confused. On a plus side he did spell my name right which some of them cannot seem to pull off.)


From: Erik

No:
http://blog.thesmithlife.com/?p=338

(I really thought he would just go away, or at least this was fair warning I am not buying your stuff. My darn optimism ๐Ÿ˜‰


From: Lee Zelina

Dear Erik,

I did not realize that you had already heard about Glyconutrients. I was doing a search on another topic and found some info on you. You need to do what is right for you. I don’t understand why you would not research it yourself and give it a try. What do you have to loose. I am currently sponsoring a little boy with a brain tumor. Radiation nearly killed him and the Dr’s put him on hospice as a result. He has been on Ambrotose and Phytaloe for 6 weeks and is doing much better. He is steadily regaining function. His parents are overjoyed. I am getting no financial gain from this! I am paying for the child’s products b/c the family has minimal financial means and it is something I felt moved to do. You can bet that the hospital made $1000’s of dollars administering radiation to the little guys brain with no one questioning that. With the amount of products he is taking-it would probably cost the parents $160 a month. Not a significant cost.

I have a friend whose sister had MS. She took the Mannatech products and is back to normal. It was a blessing for both her and her small children. She is on small maintenance doses now. I can get her number for you if you would like to talk to her.

Sincerely,
Lee

(Gotta love the appeal to my sister’s cousin’s friend’s 3rd counsin has MS and now is taking Abrotose and is feeling so much better. Of course that could have just been an exacerbation that she got over, but whatever. I love the anonymous personal accounts science.)


From: Erik

It’s a little difficult to do research on a sugar pill. I’ve looked and there are no peer-reviewed articles on glyconutrients. There is substantial research into sugar pill treatments, though that is typically called the placebo effect. Ambrotose certainly sells a pretty expensive item for the placebo effect, which is really its best case scenario. Plus, would I really gain a placebo effect from a sugar pill that I don’t think will work?!

(Can you argue logic with someone like this? ๐Ÿ˜‰


From: Lee Zelina

Were you aware that the Ambrotose product was recently granted a patent? Mannatech also submitted info to the FDA regarding research on the benefits of ImmunoStart. Drug companies are the only ones usually allowed to make claims regarding products that can treat disease. After reviewing the info the FDA gave approval for Mannatech to make it’s claims regarding ImmunoStart. It is quite an accomplishment. I will forward these e-mails.

The “Wellness Industry” is growing every year because people are getting educated and realize that drugs only mask symptoms. They do not cure the underlying problem that is causing the disease. Over time drugs create numerous negative side effects as well.

I lost my mother to cancer 2 1/2 years ago. She had been on FDA approved HRT (hormone replacement therapy) for years. I wish I would have known about the Mannatech products years ago. I watched her suffer as she underwent surgery, chemo, and radiation. Another friend had complications after years of using VIOXX and has heart damage as a result. He is a doctor and can barely work. He is sueing the drug company. I also work as a Speech Therapist in a nursing home and over the last 15 years I have seen patterns that are repeated time and time again (involving drugs). I am not saying that drugs are never needed. I am just saying that they are not the answer to curing the underlying issues and the side effects may be worse than the actual disease.

I could not help my mom but I am thankful that I have been able to help others. That is my motivation.

Sincerely,
Lee

(He did send some emails that appeared to come right from Mannatech. They seemed like political talking points as you pimp your candidate. ๐Ÿ˜‰


From: Erik

Anyone can get a patent for anything, it doesn’t prove the product is worth anything – just that no one has gotten a patent for it previously.

Assuming immunostart does as you say, which I consider questionable, that would be the exact opposite of what I need. Bolstering the immune system when you have an autoimmune disease has repeatedly proven to be catastrophic. All current treatments for MS work by inhibiting the immune response in one way or another.

(I thought about telling him I was thinking about getting a patent for my unique blend of piss and vinegar, but stopped short. I certainly seem full of it lately! ๐Ÿ˜‰


From: Lee Zelina

Do you question all of the drugs and treatment your Dr. recommends as well? Are you getting satisfactory results? Are you getting better? You are going to believe whatever you like. I am not trying to convince you. I was trying to give you good info that you might not have heard to enable you make an educated decision. I could understand your attitude if you had tried it and you had no benefit from it. I have seen too many good things as a result of it’s use to be closed minded and negative. I wish you the very best!

Lee

(A distinct lack of “regards” or “sincerely” for his signature. I removed mine for the blog posting, but they were just my automatic signature. I guess I win since he got frustrated! ๐Ÿ˜‰


From: Erik

Yes, I do question what the doctor prescribes. Fortunately, those drugs are well documented and can be researched within reputable journals.

The “use and see if it works for you” is not acceptable, and certainly not at the cost of that “drug”, and is not even remotely scientific. Refer back to placebo effect below.

(Well this was fun, now I just have to wait until the next one comes along. I am sure it won’t take too long! Next time I am going to play along for a while and see how that goes! ๐Ÿ˜‰

Mar 212005
 

Ugh. I got an email, I think on Friday, appealing to me to reconsider Mannatech’s Ambrotose. I asked him if I could post his email as a rebuttal to my arguments, but he declined. I suspected he wouldn’t reply so in my reply I did the nasty thing of making it opt-out if he didn’t want it posted. My Internet dark side! ๐Ÿ˜‰ It was actually his response to my offering to post that was even better, being sincere. He did provide an explanation of the name which makes it less offensive, it is a derivative of the name of the sugar “mannose found in the aloe vera plant” โ€“ though I still suspect a double entendre. He also suggested that I look for articles referencing Glycobiology for peer reviewed articles. But the problem with that is Glycobiology (aka Glycomics) is an entire area of biology specializing in the unique characteristics of saccharides. There are certainly no shortage of peer reviewed articles on that topic. Maybe I could tweak my search to look for deficiencies, etc. but I have neither the time nor the desire at the moment. I would prefer if they (the pro Glyconutrients people) just do the leg work, but alas that doesn’t seem likely. And with my skepticism it doesn’t seem likely I’m going to go looking any time too soon. On the other hand I am sure I will continue to get lots of email as long as the page rankings stay as there are. How did I ever get involved in this glyconutrient mess?!?!

Jan 202005
 

Effective immediately I have locked my posts on Glyconutrients, Mannatech, and Ambrotose so that no new comments may be added. The most recent commentator has pushed me over the edge, but I have a number of reasons:

  • These always seems to be comments from people who are not regular visitors to the site, and tend to never come back.
  • They always cite their personal experience, rather than scientific evidence, to support their claim.
  • They, on occasion, can get ugly – and frankly I would rather be put down by my “regulars” on regular MS posts.
  • They have yet to address any of my concerns, or objections, to the glyconutrients, Mannatech, or Ambrotose. Especially with the last poster who just continues with flame drivel.
  • Too much astroturfing.

If you have something serious to say on the topic send me an email and we can discuss. Otherwise, take your glyconutrient religion elsewhere.


Addition 10:46pm:

My wife was displeased with my choice to disable comments for two reasons. The big one being she wanted MDMHVonPA to make some witty comment – don’t we all. ๐Ÿ˜‰ The other was to see if anonymous would reply to her with something substantive. I think the liklihood of that is approaching zero, but he can always send me an email. If anonymity is a concern then he can use one of the many free tools available for anonymous email (ie Mixmaster).

As much fun as the Glyconutrient posts have been it is time to move on. ๐Ÿ˜‰

Jan 202005
 

and cured my Multiple Sclerosis at the same time! ๐Ÿ˜‰

I’d like to say that isn’t in their product literature, but it probably is – especially with a name like that. What I can’t decide is does the Ambrotose do something to your brain that makes you a “little” freaked out; or, is Ambrotose a maelstrom sucking in those who are already a “little” freaked out. Regardless, the partakers of that medicine are passionate, and remain convinced, it is curing their Multiple Sclerosis. In response to this anonymous post and the comment “Within ONE WEEK of taking the ambrotose I knew things were changing;” I’m sure he is right – his wallet got MUCH lighter. -and then with the extra weight/strain off of his spine he is now better able to walk.

I’m still waiting on the 3rd party review of these “glyconutrients” in a scholarly journal, but something makes me think I’ll see a scholarly review of Alex Chiu’s Eternal Life Rings long before that. ๐Ÿ˜‰ Furthermore, I am sure that the National MS Society is intentionally keeping Mannatech’s product quiet, because they know it works!

As to being an ***hole I really would have a hard time defending me being otherwise. But, I bet if I took Mannatech’s Ambrotose that would cure me of being one! (though, the rectal benefits are probably an off-label use – I’m sure it has to be taken as a suppository to be most effective) ๐Ÿ˜‰

Personally, I think the guy is astroturfing. Why, if he is using the product, and happy with it, would he do a search that would yield my page? He’s probably mad because I am far too high on the search engine results. I guess I get the last laugh! ๐Ÿ˜‰