Oct 282015
 

Maybe not friends, but we know each other well. 🙁

A few weeks ago I started experiencing some slight tension in my right calf. I wrote it off for a while, but it progressed to decent pain when I was walking. This was a first, and then I had no choice but to slap the label of spasticity on the issue. I tried Motrin to see if it would help with the pain when walking, but no effect. Fortunately, the tenseness not stick around much longer and is gone now.

While I was having the spasticity problem, and persisting now, is a small balance problem. I have not fallen, but I am glad for nearby support. I am especially thankful for the handrail next to the stairs. This is improving but still lingering.

Apparently, when my “old friends” came over they invited someone new. This was especially disappointing on a few levels. Who wants any of these types of “friends?” I have gone quite a while without any issues and even longer without any new issues. Very disappointing.

The new issue is a gait problem. Difficult for me to describe. I will see if I can get a video and post that for a follow-up.

Jul 032007
 

I’ve seen additional improvement since the last time so the antibiotics are working. My liver and spleen are back to a normal size. My balance is at normal levels (standing with eyes closed and walking toe-heel backwards). My Lymph nodes in my neck are also back to normal; which would be less Lyme die-off (Optimist: So much has been killed that there isn’t much left to kill; Pessimist: The antibiotics aren’t working well and there is less Lyme die off. Since they were swollen before treatment I’ll go with the optimist). Last my eye tracking has returned back to normal (follow the finger without moving your head).

Jan 312007
 

Another exacerbation. In addition to the fatigue I have been having some balance issues, some pain in my arm (low level, burning pain; and only from a light touch), and an increase/resurgence of my tremor. On a side note, this type of pain is the most common type of exacerbation that I have, and typically affects the arms or legs. Recently, I also went through a period of sleeping very lightly; which certainly didn’t help the fatigue. And probably related, it seems like I have bounced from one infection to another for a while, and maybe that is why I am in yet another exacerbation. Of course, and for the first time, the antibiotics have given me an horrible case of thrush (and how can we forget the case of my MS was “cured” by getting rid of the Candida). So now on top of not being able to drink caffeine I really need to quit drinking sugary beverages (A&W Root beer) since the Nystatin anti-fungal liquid (for 7 days [and it tastes awful], and hopefully I didn’t just do in my liver with that and Rebif) is having trouble getting it under control; and since I don’t care that much for plain water that means aspartame sweetened Kool-Aid (and that probably isn’t good for the MS either ;-).

Jan 172007
 

In response to Gwen’s post my exacerbation pre-dated the holidays. I am just a little slow to get to posting about the exacerbation, etc. (the exacerbation pre-dated Thanksgiving, and just being the 5 of us at home probably doesn’t count as holiday stress – just regular stress ;-). In fact the Solu-Medrol was completed weeks before Christmas. I also agree that many exacerbations just go away by themselves, most within a couple of days. This was not the case with the hands, and was the exact same track that led to the really bad exacerbation (from which there is residual damage). I did not want to risk any additional damage to the hands, and for the record I was recently re-tested and no carpel tunnel (nor any other tunnel problems in the arms) that would be causing residual problems.

Secondarily, does the cause of a significant exacerbation (holiday stress, etc.) matter other than for academic purposes. Regardless of the time of year, and surrounding circumstances I will treat hand problems aggressively. Conversely, pain, itching, balance, fatigue, dizziness/vertigo, numbness elsewhere, etc. will not be treated aggressively – and probably not treated at all (other than the normal routines). I think everyone needs to have thresholds with MS for exacerbations that are tolerable, and exacerbations that are not tolerable that will be treated aggressively. Some people may find walking problems to be more serious than I do, and treat those aggressively.

I’m curious, where do you work that you get 6 weeks of paid vacation (and are they hiring!)? (I get 4 weeks, but that is above average in my experience)

Jun 272005
 

The bottom of my feet are getting less numb. On the other hand my balance is getting worse. All I know is that I need to be steering clear of MDMHVonPA and his stroller of death – I have enough balance problems without being hit. Of course I’d be the wrong one to hit since I would fall towards the offender (I’m sure on accident 😉 and end up wiping out 3/4 of his family! 😉