Apr 122015
 
Eriksgirls picture of me showing Anisocoria

Eriksgirls picture of me showing Anisocoria

It is not a tumor! 😉

Eriksgirl has uses my eyes as her personal gauge to see if I am near a seizure. Maybe that happened for her after my last seizure where my pupils were very different sizes, like someone with a concussion and this was before I hit the floor.  I told her they were not off by much when she showed me the picture.  She exclaimed they should be equal. 🙂

What I do know is that the Anisocoria (different pupil sizes) is relatively new for me, and not something I have had my whole life. This would make the Anisocoria most likely caused by Lyme, or MS. I think for either of these it would point to optic neuritis but my eyes are checked regularly (not to say that optic neuritis could not be missed). Other than that I have no great ideas other than a tumor, which I am pretty sure it is not that (recent MRI :-). (or I keep getting concussions, might explain my repeating myself so often to the kids)

I guess it will be something to discuss at my next neuro exam. I cannot remember the last time he examined my eyes. Fortunately, my optometrist has a really nice computer/camera that takes a picture of the back of my eye to look for problems. He is not a doctor, but he regularly checks the optic nerve.

Aug 062014
 

As I posted before, I was diagnosed with Lyme late 2013.  I believe I have had LYME for over 20 years and know that it will be difficult to be completely LYME free.  I am convinced that I must build and protect my immune system.  I believe that treatments should include both conventional and alternative.  I began aggressive treatment December 30, 2013.    I took heavy antibiotics and anti-malaria medications through April of 2013.  At that time, I retested for LYME with the I-spot test.   The test showed that all of the heavy medications were doing their job and the LYME Spot count was 75% lower.  It was at that time that I decided to move away from Antibiotics and heavy medications.  They had brought me so far, but in the process had caused candida and gut issues.  I read Bryan Rosner’s book  “The Top Ten Treatments for LYME” and began to read up on RIFE frequency treatments.

I am lucky to have a alternative Chiropractor in my town of Littleton Colorado, who has had great results with RIFE for LYME and other bacterial infections.   He is able to do dermal scans to get an idea of bug load and location.  I then sit at his office for a fee and use the Rife frequency treatments.   I generally sit for 30-60 minutes each week.  I am now just taking Grapefruit seed extract Probiotics Krill , magnesium Vitamin B, CoQ10 and alpha lopic acid.  I take Kavinase for anxiety when I need it.  I also began drinking LIMU which is a interesting sea food product with Focoidan.

I have not purchased one, but may consider someday.  The machine he uses is called Wellness Pro  and run about $3800. I can’t afford to lay out that much money at one time.

I absolutely have seen improvement.  Last week, I felt as though I was catching a cold and I went into the office and used the rife machine for 30 minutes. Then sat in a Infrared Sauna to detox.   I felt better that afternoon.  I continue to have more consistent good days.

It is a marathon, not a sprint.  But, I take each take and try to enjoy especially when I feel good, which is more frequent now!

Praise GOD!

 

Jul 192014
 

A city girl from Denver learns the source of her chronic suffering…
and discovers that Lyme disease can strike anywhere

By Linda Warner, guest blogger

Let me start by saying that I am an overcomer of many things. I grew up in a very abusive alcoholic home, where my parents struggled to put food on the table. I left my home at 16 to enter an abusive relationship with my daughter’s father. I stayed in the relationship far too long, but knew it was not what God’s plan was for me. I put myself through school, even going on to get an MBA. I ended that relationship. But nothing has been more draining to overcome the Diagnosis of LYME. I know that God has given me the strength and the tools to overcome anything.

I am not sure when I got bitten by a tick. I experienced no bulls eye rash. What I did experience, seemingly from out of the blue, was bone-deep achiness and endless fatigue and anxiety. Psychiatrists diagnosed me with everything from PTSD to BiPolar. As a single parent, marathoner and hard driving, middle-aged sales rep for a major global pharmaceutical company, I told myself this was normal. After all, my work had me in and out of doctors’ waiting rooms all day long — of course I would be prone to picking up whatever the patients were bringing in. Plus, wasn’t this what all “women of a certain age” go through? One fall day in 1989, driving to a sales call, I literally fell asleep at the wheel. I awoke after colliding with a tow truck. While the truck driver was fine, I suffered a back injury and my body ached worse than ever.

The accident really scared me and served as a virtual “wake up” call to get help. Surrounded by doctors at my job, I had easy access to a wealth of professional advice and diagnoses. And everybody pretty much said the same thing: It was all stress and anxiety. Continue reading »

Mar 252013
 

I was trying to think of a word that best described MS/Lyme and I think the word is inexplicable. For me, years ago, life was going along normally and then out of nowhere big problems started. I tried to write them off, and some went away. But much like the old adage problems that go away by themself will also come back by themself. So now as much as life is full of inexplicable things I now have the MS/Lyme which is a constant on and off for no reason. It is better, but not gone.

While not new news the weirdest thing, other than getting MS, was when Katja was “upright” again. I like to hear inexplicable stories of things going good for a change.

Nov 202012
 

Back in February I was contacted by someone wanting to discuss my MS condition and when I was born, etc. In my post I noted that Ron the astrologer predicted a flare up, with no personal information from me. Maybe he is psychic too. 😉

Apparently per this article Ron was onto something. Neurologists now links birth month to your risk for getting MS. Paraphrasing the article if you are a Aries or Taurus you are in trouble, but if you are a Scorpio or Sagittarius you should be fine. No doubt some time soon your neurologist will use Tarot cards for treatment and diagnosis. I eagerly await my reading.

Less scandalously this is just another Vitamin D study and linking it back to pregnancy. I am all for blaming my parents but this is a bit of old news.

Nov 172012
 

For a few days I had pain in the balls of my left foot. I had this type of pain back in 2007 which my LLMD, at th\e time, blamed on gout. No surprise the antibiotics/antimalarials fixed the problem with no diet change. The pain had never come back until recently. Even though it had been years I immediately wondered if it was MS or Lyme. Probably just a weird pain. I am sure most people have weird pains occasionally. Having been diagnosed with a chronic problem I think my natural inclination is to “worry” more over normal pains/things. Maybe that is another complaint I have with the diagnosis. Nothing can be normal again.

Aug 202012
 

After years of not getting any comments or emails about Mannatech or Ambrotose I got an email a few weeks ago. Rather than a sales pitch it was a take down notice on some of my posts. That is a fist. Of course I never advocated the use of the products so the emails are SPAM or script junk. If they are scripts searching the web I would have also have expected Mannatech’s Ambrotose Saved My Soul to be included in the take down notice. 😉 Against my better judgment I replied to two of these emails with no response. No doubt I will continue to get these junk emails.

For a product that could supposedly cure everything Ambrotose certainty came at a great price. Of souse they can not legally say that which had to hurt sales. What does the product do other than cure everything? Furthermore, while I am not going to take their product because I think it is junk feel free to give it a try. I do not think it will hurt you.

Transcript of the email below.


8/1/12
From: jbishop@mannatech.com
CC: mannatech_enforce@opsecsecurity.com

Subject: Cease and Desist

RE: Impermissible Use of Health Claims Attributed to Mannatech Products
http://blog.thesmithlife.com/?p=254
http://blog.thesmithlife.com/?p=340
http://blog.thesmithlife.com/?p=563

Mannatech, Incorporated (“Mannatech”) routinely reviews the internet to insure our products are being properly represented to the public. Health claims which go beyond the specific claims approved for Mannatech products and/or claims which state, suggest or imply Mannatech products cure, treat, mitigate or prevent disease are against Mannatech policies.

Your website (identified above) contains statements which are contrary to Mannatech”s policies. You are hereby requested to immediately remove from your website any statement which (i) states, suggests or implies Mannatech nutritional products prevent, treat or cure disease, (ii) states, suggests or implies Mannatech nutritional products are a substitute for a doctor”s standard of care, and/or (iii) otherwise violates Mannatech”s Associate Policies & Procedures.

If you have any concerns or questions relating to the issue raised herein please contact the undersigned at jbishop@mannatech.com. We further request that you contact the undersigned within five (5) business days from the receipt of this letter to (i) confirm the offending statements/representations have been removed from the website and (ii) confirm you will refrain from making such representations in connection with Mannatech nutritional products in the future.

The removal of this type of impermissible information from the internet is of great importance to protect Mannatech”s right to conduct business. Mannatech is prepared, if necessary, to take legal action to secure your immediate compliance with this demand, including litigation seeking injunctive relief, damages and attorney fees as allowed under Texas law. It is our hope, however, that you now fully appreciate our concerns and will take prompt action to avoid escalating the matter further.

We thank you in advance for your immediate attention and cooperation, and again stress the importance of complying with our demand and contacting the undersigned as requested herein.

Respectfully,

The Mannatech Legal, Ethics and Compliance Department

Note: Nothing contained in this letter shall be construed as a waiver of any rights Mannatech, Incorporated has at law or in equity, all of which are expressly reserved.

Apr 112012
 

No. Well maybe, but I would not know because I have never played Angry Birds. If it does I am willing to give it a try. Regardless I read this article about computers boosting brain power and thought they were not investigating anything new. Today the computers are helping our brains while beating us at Jeopardy and Chess so tomorrow they will rule the world. Well I welcome my computer overlords.

I was having a conversation recently with someone who was having memory issues and the doctor said it is gone forever you and only maintain. I told him I did not believe that, but you must exercise your brain. No one likes memory problems (unless you could selectively forget 😉 ). You can mitigate memory issues by keeping notes etc. but there is a limit. I do not think the computer training are the solution. I think they used in the computer study the same thing I told him. You must exercise your brain and that is all the computers did. Sitting around all day watching TV or surfing the Internet is not exercising your brain. Worse than that I think some TV shows and some Internet sites actively destroy your brain. Read good books, play board/card games, etc. There are thousands of fun ways to exercise your brain. Do not blame everything on age or disease. Some memory issues may be the result of watching too much “reality TV”.

Apr 102012
 

As I read this blog post two things struck me. First the drug is Lariam not Larium (it is not a “U” it is an “A”). I usually expect my health care providers to spell the drug names correctly. To proceed and misspell it incorrectly six times in that post is pretty bad. So much for spell check. 🙂 The bigger issue is that Lariam is a nasty drug with bad side effects. There are much better choices in antimalarials, such as Malarone, for treating those types of infections. Malarone is more expensive but you should not end up in a phych ward with suicidal tendencies. I knew that the military was/is investigating Lariam and the Afgan murders. I will be interested to see how that works out, but in the minimum it should concern you that the military thinks Lariam could drive you to that point.

My concern is that those who are treating persistent Lyme are somewhat “bucking the system” and thus willing to take riskier drugs. I know you want to be better, but be careful. The drug I took and was very concerned about was Levaquin. Levaquin is effectively a black box warning drug; as with all in that class. I was very concerned about permanent damage and I do not think I was getting a good return on my investment in that class of drugs.

As always be informed about what you are taking and ask questions. Lyme doctors are already going to be living on the edge of treatment protocols so if you are seeing one be extra careful. Do not be afraid to ask questions, ask if another drug would work as well, or just say no.

Mar 262012
 

I while ago I got a link to sign a petition against the IDSA lyme protocols. At the time I did not have the time and eventually it just got forgotten. I think in the end it got forgotten because the IDSA protocols never impacted my treatment. I disagree with them, but you tend to be more passionate about things that personally affect you. I was reading Lymelight’s blog and it reminded me of the forgotten petition so I made haste to complete it before I forgot again. To make up for my late submission I submitted another one for Eriksgirl. My other confession is that I submitted another petition for the astrolgist. I obviously had his email address, but I ended up with his home address when he threatened that he could find my personal info whether I gave it to him or not, and to quit being paranoid. To be on the up and up I did not think he wanted an email subscription of updates so I opted him out of that. Deep down Ron can be proud of signing this petition via proxy. 😉