As I write this for the new site it seems so long ago that I was diagnosed with Multiple Sclerosis. While there were signs before the one that resulted in my diagnoses the diagnosis symptom ultimately became crippling. The solu-medrol did not help and it took months to recover. Certainly plenty of fear and uncertainty of what the future held, probably common among most MSers. The length of time to recover made me wonder if it was primary progressive. Heck I still standby my assertion that MS is not a disease but a syndrome, and this further leads to despair and frustration.
As I am sure with many the MS continued to get worse. My neurologist at the time was concerned at my relapse rate. He ordered a $1000 test from Athena to see if I had antibodies to the Rebif. (Athena billed the insurance incorrectly and I could not get them to fix the mistake. Now their is a billing cost dispute. Just perfect.) No antibodies were found and there was a discussion of changing medications, but that did not happen.
Fast forward a few more years and I finally paid attention to the response I got to the MS Rash. That was certainly a blessing. With a lot of work I got the necessary blood work that showed I had Lyme, the rash was Bartonella. Tracking down a Lyme Literate MD (LLMD) was a challenge but we did find one. I started a treatment course of IV antibiotics for 3 months out of town. I return from out of town to have seizures; Lyme and Bartonella both carry an increased incidence. Seizure drugs are nasty and one attempt to pull down the dose shows I still need them. Fun. Currently I continue to see the new LLMD who focuses on oral antibiotics. As a quick side note I never remember being bitten by a tick nor did I get a bulls eye rash. It is only by reversing back through symptom history that the tick bite happened in 2001 on trip to Pennsylvania.
As I ponder where I have been and how far I have come I am amazed. I have not had any new problems since beginning treatment, other than the seizures, and have been slowly getting better. Considering I was originally misdiagnosed and the MS treatment was making me worse this is amazing. There is more ground to cover and by the Lords grace I am confident that I will be done with all of this.
For those curious as to why I continue to tag my posts MS. Due to my view of MS being a syndrome and my Lyme is neurological with lesions I meet the criteria for MS.