Lyme Treatments
This is a listing of the treatments that I have taken for Lyme. I have seen two doctors and hence the division in the sheet. I am doing much better, but as I post this on March 20, 2012 I am not all better. At the same time I am also not actively pursuing treatments. I am hanging in a long state of limbo.
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Drug | Dosage | Frequency | Start Date | End Date | Comments |
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IV Rocephin | 2g | QD | 6/5/2007 | 7/2/2007 | |
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Tindamax | 500mg | BID | 6/21/2007 | 7/12/2007 | Anti-protozoa 1 pill 1st day. Think targeting cyst form |
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Ursodiol | 300mg | QD | 6/26/2007 | 7/2/2007 | Prevent Bile sludge when taking Rocephin. Should have been taken all along? Did not get gall stones so I guess all is well. How does taking “bile” prevent sludge? |
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IV Cleocin Phosphate/ Clindamycin | 600mg | BID | 7/2/2007 | 7/17/2007 | Replacement for Rocephin. Burke said this is the one that really got to him. Does not cross blood-brain barrier well. Burke started me on a higher dose than the normal starting dose of 300mg. Will progress to 900mg |
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Malarone | 250mg | BID | 7/13/2007 | 7/28/2007 | Anti-parasite. Intended to target the protozoa Babesia. Last dose was the AM dose. I am concerned that the medication is resulting in the chronic cough, eyesight issues, and blood sugar issues. It can also cause sleep issues which may be why I need the Ambien to go to sleep. |
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Ambien CR | 12.5mg | QD | 7/13/2007 | 10/18/2007 | To help sleep. Seems to be needed more while taking Malarone. Want to stop but need to wean off. Waiting until anti-seizures are at full potency before stopping on advice of neuro. Ended to start a lower dose as part of the weaning off |
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IV Cleocin Phosphate/ Clindamycin | 900mg | BID | 7/18/2007 | 8/8/2007 | I got the impression that the Dr. thought that this crosses the blood-brain barrier. Every indication that I have seen indicates otherwise: www.pfizer.com/pfizer/download/uspi_cleocin_phosphate.pdf Last dose was the morning dose |
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Malarone | 250mg | BID | 7/31/2007 | 8/27/2007 | Dr. said coughing was part of Babesia and normal. And blood sugar was a result of insulin being released as part of stress on body. Do not know why Dr. stopped Malarone before 4 months were done. |
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Artemisinin | 200mg | BID | 8/6/2007 | 8/27/2007 | OTC treatment for Babesia. Using Nutricology brand. Stopped because I ran out |
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IV Levaquin/ Levofloxacin | 500mg | QD | 8/8/2007 | 8/13/2007 | Was told by medical assistant that this was to treat Bartonella |
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Azithromycin | 500mg | QD | 8/9/2007 | 8/26/2007 | Was told by medical assistant that this was to treat Bartonella, and I think Babesia. This seems consistent with this CANLyme article: http://www.canlyme.com/coinf.html |
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IV Levaquin/ Levofloxacin | 750mg | QD | 8/14/2007 | 8/21/2007 | Bumped doseage. Dr. did not want to raise to 900mg, probably because of the toe pain. Said he was absolutely certain it was Gout, but would not bump until pain went away. Was shorted a bag for a final dose on the 22nd |
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Septra DS | 800/160 | QD | 8/27/2007 | 8/27/2007 | Sulfa drug. Intended to target Bartonella. After bad-reaction (shortness of breath, etc.) and then seizure did not re-take. I don’t think it caused seizure (Lavaquin/Ambien Larger Role) the bad reaction freaked me out, and now carries a ban |
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Levaquin/ Levofloxacin | 750mg | QD | 8/27/2007 | 9/9/2007 | Oral version. Dr. said this was the maximum tolerable for oral consumption. If is too bad split pill for AM & PM until the body adapts. Stopped to see if it would help with my stomach and back, plan is to resume after about a week |
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Levaquin/ Levofloxacin | 375mg | QD | 9/19/2007 | 9/19/2007 | Dropping the dose for 2 weeks post seizure. Doctor wanted 250mg, but talked him into halfing the 750mg since they were so expensive and had 750′s. Should switch to 500mg after 2 weeks, but talked about moving to Cipro since it should be cheaper. Stopped again because too nervous of side-effects |
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Tindamax | 250mg | QD | 9/19/2007 | 10/6/2007 | Breaking the 500mg pill in half. This is intended to be easy on my body post-seizure. Per the doctor this is also intended to replace the effect of the Septra DS. Misread my notes; this was supposed to be BID |
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New LLMD | New LLMD | New LLMD | New LLMD | New LLMD | New LLMD |
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Biaxin XL (Clarithromycin) | 500mg ER | BID | 10/10/2007 | 12/7/2007 | Main Lyme treatment? Possibly was taken so Babesia could not to develop resistance to Malarone? |
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Malarone | 250mg | BID | 10/10/2007 | 2/7/2008 | For Babesia. Since there was a break in the treatment I will need to start the 4 month treatment from scratch. I don’t know why the original LLMD stopped the Malarone prematurely |
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Flagyl (Metronidazole) | 250mg | TID 3 days per week | 10/14/2007 (Resumed on 2/18/2008) | 6/28/2009 | Replaces the Tindamax for fighting the cyst form of Lyme. Will be used in a pulsed fashion. Ramp up with tid for 1 day on week one for 2 days on week 2 and then on week 3 can do the full 3 days. The 3 day schedule is consecutive days such as Friday, Saturday, Sunday. Held on 2/12/2008 as part of the all-antibiotic stop because of the eye problems. Resumed on 2/18/2008 with the blessing on the LLMD because eye problems likely not antibiotic related. Stopped on 3/17/2008 pre-surgery to give the body a break. Resumed on 4/7/2008. |
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B12 (cyanocobalamin) Injection | 3000 mcg | 2 days per week | 10/13/2007 | Prescribed to give more energy and to fight free-radicals. Cleared to take once a week if twice a week is no longer necessary. This is an IM injection. |
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Ambien CR | 6.25 mg | QD | 10/19/2007 | 10/25/2007 | This is the wean down dose before stopping the Ambien to reduce the likihood of inducing seizures per neurologist |
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Diflucan (Fluconazole) | 200 mg | QD 14 Days then QD Wed & Sun | 10/25/2007 (Resumed on 2/18/2008) | 6/28/2009 | Kill off the yeast infection that is plaguing me. Repeating this treatment cycle every month Held on 2/12/2008 as part of the all-antibiotic stop because of the eye problems. Resumed on 2/18/2008 with the blessing on the LLMD because eye problems likely not antibiotic related |
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Cipro (Ciprofloxacin) | 500 mg | BID | 12/8/2007 (Resumed on 2/18/2008) | (Held on 2/12/2008) Done on 5/20/2008 | For Bartonella. Held on 2/12/2008 as part of the all-antibiotic stop because of the eye problems. Resumed on 2/18/2008 with the blessing on the LLMD because eye problems likely not antibiotic related. Stopped on 3/17/2008 pre-surgery to give the body a break. Resumed on 4/7/2008. |
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Minocin (Minocycline) | 100mg | BID 1st week then 1am 2 PM | 2/10/2008 (Resumed on 2/18/2008) | (Held on 2/11/2008) Done 6/28/2009 | Main Lyme treatment. Stopped treatment after the AM dose on 2/11 because of visual problems. Do not think anitibiotic related as of 2/15 but have not resumed because vision has not improved. Resumed on 2/18/2008 with the blessing on the LLMD because eye problems likely not antibiotic related. Starting Minocin on 2/18/2008 once a day for a week. Plan to move to BID after a week. Went to twice a day 2/27/2008. Changed to one in AM and two in PM on 3/5/2008. Stopped on 3/17/2008 pre-surgery to give the body a break. Resumed on 4/7/2008. Done because of side effects |
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IV Rocephin via MediPort | 2g | BID 4 days a week | 3/24/2008 | 9/25/2008 | Treat Lyme aggressively because of bad MRI and vision problems |
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Ursodiol (Actigall) | 300mg | BID | 3/23/2008 | 9/25/2008 | Prevent gall stones from Rocephin. Started a day before Rocephin just to be safe. Still have no clue how this works |
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IV Vancomycin via MediPort (selfinfusing) | 62.5mg | One Dose | 4/15/2008 | 4/15/2008 | For positive blood culture for Staph. Infused over an hour (65ml Bag). Probably false positive test |
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Cholestyramine | 4g/scoop | .5 tsp BID 1st week then 1 tsp BID | 8/11/2008 | 6/28/2009 | To reduce Lyme toxin levels. Shoemaker protocol? |