Mar 292016
 

My co-worker is once again heading out to do the Multiple Sclerosis society MS 150 bike ride. I just wish I could walk a little better let alone do a long bike ride! 😉


From Chris

Why I Ride

At the Ride Marshal Kick off meeting last year, a MS Ambassador spoke. Her story illustrates why I put in the hours training on my bike, doing safety training for the riders and helping out where ever I can. The Ambassador was lifted on to the stage; there was no ramp for her wheelchair. She told her story about her fight with Multiple Sclerosis. She was not bitter or beaten down, in fact she was quite optimistic due to her spirit along with the assistance offered by the MS Society which she said made a big difference in her life. She ended by saying that she had just become a grandmother. She could not dance at her son’s wedding but was planning to be out of her wheelchair and dance at her grandchild’s wedding.

Lets Dance!

If you are interested in sponsoring Chris you can go here.

 Posted by at 6:37 am  Tagged with:
Mar 062016
 

I was filling out a quick form on MS and it asked about treatments. I recognized all of them except one, Lemtrada. I thought wow I must have been living under a rock somewhere. Then a quick search and then I realized it is Campath with a new name. Apparently I was living under a rock since I missed the name change, etc., but now seems like a good time to revisit the drug.

I am glad I have the old information about the drug. It is now prescribed for relapsing-remitting types of patients who struggle on other drugs. What I find concerning is that, other than the drugs other horrible side effects, it kills oligodendrocytes which are key for myelin,and myelin repair. It makes me skeptocal of their claims, and peoples long-term outcomes. Bottom line it does not sound like an effective treatment that all but guarantees cancer, plus any number of other woes.

How do they even get this stuff approved as a treatment?

Mar 032016
 

Hi again old friend. 🙁

I went to my scheduled follow up appointment with my neurologist to discuss how the copaxone is going. Apparently not so great. I did not expect much so here I am. I expected to get another round of steroids, that I detest, but instead he prescribed physical therapy. Eriksgirl was pleased, and I am just glad it is not steroids.

Physical therapy has begun. I did learn some things that I did not expect about myself. I did not realize that my left leg was stronger than my right. I would assume this has to do with the exacerbation because my right leg was excessively weak under some of the tests compared to the left. Some of their activities are focused on my balance which is good. My balance has never been great, but it has now gotten to a very bad place. I am interested to see how far physical therapy can get me. Hopefully significantly better.