Oct 222014

I wanted to share some good news,

I just got test results back. My third I-spot test. It is showing that I am improving. The test has been progressively better each time. I started at a very high level of Antigen response in November 2013. I have improved by 90%. I know the retesting is expensive, but so are the treatments.  The test cost $340. I feel being able to see the numbers go down is a huge incentive and mind boost. It justifies the cost of treatment to know I am heading in the right direction.

I still have slow days. But, I am feeling so much better. Seeing the test results absolutely helps with my emotional state. It helps me to know that I am on the right path of healing. I am working on gut repair and overall health. There is a light at the end of this dark tunnel. With God’s help and Immune building therapies and diet, I plan on full remission!!

Oct 152014
Coconut Water

The coconut water I found in my fridge that I say has almost no flavor.

I open the fridge one day and I see this carton of coconut water so I ask Eriksgirl. She says that it is very healthy, from what she has read, and she saw it at the store. She goes on to tell me it is in the list of the worst things she has every consumed. Adding to that she said none of our kids liked it either, but she confessed that she probably poisoned the well with her reaction. Now this has me intrigued normally I would not have tried the coconut water but Eriksgirls reaction is a positive mark that it will not be that way for me. I do not understand how Eriksgirl and I can agree on almost everything regarding food but if the taste sickens one of us it will not the other. That is why I asked her about the kids because there is one that mimics my tastes pretty closely and the same for her. Improbable they all had the same reaction so we are back to her poising the well. So I grab the jug and gulp some down. The coconut water was in no way repulsive though it did have a light, somewhat familiar taste that I still have not placed. In no way did the coconut water taste like a coconut which I think is what Eriksgirl was expecting. Coconut water was effectively a win for me the taste was tasteless/OK/tolerable and it is healthy, but I do not expect to ever see it again. 😉

As an after note I followed up with the child whose tastes most match mine. She confessed she did not care for the coconut water but it was not awful. It was closer to no taste at all, like me lightly flavored water.

Oct 072014

I was reading a little about Biogen’s new drug anti-lingo-1 / BIIB033. While this is too early to call as the drug is in Phase 2 clinical trials I am sure we will see it on the market. I have to agree with this article that it is not specified how they are testing for remyelination. If there was a side benefit I would hope that the Anti-LINGO-1 would help with my tremor because there is a noted increase in LINGO-1 cells with people with essential tremor. I will take hopeful stance as this does appear to be promising candidate for remyelination.

As an addendum I did some additional searches and the MRI technique to measure remyelination does seem interesting. You can view some images in the presentation here along with some additional data about the drug.

Oct 022014

Five things to know first before you start SVT:

  • Don’t Do It! (as If you didn’t already know 😉
  • It hurts like Hell! (worst pain of my life!)
  • There will be other drugs that go with it (hope you’re not allergic to any of them!)
  • Make sure you are near a hospital with the appropriate drugs first
  • If you are going to go this route do not be a pansy get at least 4 or 5 “injections”
  • Did I mention it hurts!

Copperhead Much Bigger than the one that bit Me

I was bitten by a copperhead snake in June. The snake has gotten bigger with each retelling and I am sure I will eventually make it up to Titanoboa portions, but I will try to give one last accurate attempt. First, the picture here is much bigger than the snake that bit me; I just grabbed a picture from wikipedia I did not take a picture of the snake while it was biting, wrestling with ;-), me. I do think that the snake that bit me was a young copperhead, though I did not notice a different color on the tail nor did I take the time to get a ruler, etc.

I went outside to investigate a snake and upon seeing it deemed it ok for throwing over the fence. The snake quickly called out my ability to identify safe snakes by biting five times across both hands. After the first bite it was quickly clear it was a venomous snake because while not immediately a level 10 pain it quickly ramps up to a 10+ pain. It caused some bonus side effects like trouble walking, even though it was all in my hands, and disorientation (could be the pain). So eriksgirl called 911 and the paramedics arrived. The one treating me was apparently about as much as a snake expert as I am as he gave us the “good news” that it had to be a rat snake and not venomous because there are no venomous snakes where we live. He did think I should be checked out at a hospital because it is an animal bite. 🙁 All I wanted was pain medicine and I stil do not know how I did not go in the house and empty the entire bottle of Motrin, I am ambivalent if that was for the better or not more on that below. It seemed like hours, my judgment of time is probably a little off, but eriksgirl eventually got us going to the nearest hospital. Continue reading »