Over the last few month I have been contacted a few times about writing guest posts for the blog. The first one fell through before it got submitted, and others just die. The one that posted on Wednesday was proof that the process can work. Normally I would not allow the Health Science type post because it is too off topic (If it is going to be off topic it should be me ;-), but it was a good starting place for guest posts. If you are interested in writing a guest post just drop me an email: erikmsblog @ gmail dot com.
I while ago I got a link to sign a petition against the IDSA lyme protocols. At the time I did not have the time and eventually it just got forgotten. I think in the end it got forgotten because the IDSA protocols never impacted my treatment. I disagree with them, but you tend to be more passionate about things that personally affect you. I was reading Lymelight’s blog and it reminded me of the forgotten petition so I made haste to complete it before I forgot again. To make up for my late submission I submitted another one for Eriksgirl. My other confession is that I submitted another petition for the astrolgist. I obviously had his email address, but I ended up with his home address when he threatened that he could find my personal info whether I gave it to him or not, and to quit being paranoid. To be on the up and up I did not think he wanted an email subscription of updates so I opted him out of that. Deep down Ron can be proud of signing this petition via proxy. 😉
I have posted a few times before about marijuana. I came across this article the other day, and the example they used was the need for weed for MS tremors. Twice a day! Before she was trapped at home and now suddenly she is free. The whole story sounds implausible. Maybe the hit in the evening is because her tremors are keeping her awake? In the end this is exactly why I mostly do not support medical marijuana. There are ample prescription medications available to treat tremors. She is taking marijuana because she wants to take marijuana, and now she is just another pot head. To be fair this could just be another horribly written article that left out lots of information. In the end I think most people using “medical marijuana” do not need it, and it is an abuse of the system.
As to the linked article I see no problem with their being additional restrictions on those who take highly controlled substances. I spent months not being able to drive after each seizure to prove that I was stable. If she, and the others, are in that bad of shape than they should probably not be driving. Or if they are not that bad choose a normal medication. Or take the bus.
For some reason I never posted my Lyme treatments. Here is the spreadsheet with various comments. The first doctor was a quack. I am shocked he has not seriously hurt someone. The next doctor never seemed to take my care that seriously and left me on inadequate medication for long periods. It peaked with him not knowing one of the drugs he prescribed negatively impacted male fertility. As always I recommend trackng symptoms and medication. For what it is worth here is a quick list:
B12 (cyanocobalamin) Injection
Biaxin XL (Clarithromycin)
IV Cleocin Phosphate/ Clindamycin
IV Levaquin/ Levofloxacin
IV Rocephin via MediPort
IV Vancomycin via MediPort (self infusing)
I write about urinary issues, and then I suddenly get stuck with one. This is an extremely rare problem for me. For me it manifests in one of two ways. This time, and the most common of the two, is urgency when there should not be any urgency. Making it worse the urgency is while I am sleeping, and not during the day. So lately I am getting up two or three times during the course of 6.5 hours of sleep to revisit the bathroom. I suspect this is related to the house being about 10° Fahrenheit warmer. This has happened at similar periods where I was getting to warm. I will either adjust or wait it out. Of course this type has a name: nocturia. Maybe I should do a little more investigating on nocturia.
The other bladder issue is that I have had difficulty emptying my bladder (this has only happened a couple of times). When I was having this type it was worse in the morning; probably because I am always warm from sleeping under too many covers. Along those same lines it was also worse when I got hot.
For both types I never took any treatment and eventually the problem went away; usually within about a month or two.
As I just went to the NMMS site it says that bladder dysfunction occurs in 80% of people with MS. Very disappointed I could not be in the 20% that missed that problem. I try to follow good urinary habits, but I do not know what can be done to help overcome nocturia. Maybe I will look up solutions.
Could be a fetish. Does that help?
Moving on I came across two webcasts on “intimacy” while having Multiple Sclerosis. Not that it matters but the order I listened to them was Intimacy and MS: Keeping Your Relationship Strong and then Let’s Talk About Sex. The first one was definitely the better one but overall they both covered the same things. Here are my thoughts.
These webcasts can really apply to any disorder and really just apply to sex in general. There are certainly some things specific to MS, but one of the takeaways from this was that not everything is MS. Just because you have MS does not mean that is the cause of your problem. I think they gave a perfect example of it is not MS in the second webcast.
The big one, and no surprise, is to communicate with your loved one. If you are having any issues or things that need adjusting than obviously that is something you need to work on together. Is anything more intimate than sex? There seemed to be a recurring theme of impotence and bladder dysfunction in both webcasts. To be fair one person’s bladder dysfunction is Tiger Woods fetish. Bottom line communicate with your loved one your issues and desires so you can work as a team.
The other big thing that I would hope is common sense but was a major theme is take something (e.g. Medication, Sexual Aids/toys) to work with physical problems. So we have already connected with our love one above, but that does not automatically fix the physical issues. If you have erectile dysfunction than take some medicine, do not give up on sex. I liked the example in the webcast where the guy gave up on sex because of the erectile dysfunction without explanation, his wife felt rejected, and it led to an affair. Switching sexes there was a lot of focus on females who have lost a significant amount of sensation and have trouble reaching orgasm. They discussed that with reduced sensation it is nothing personal to the male, but it may take something extra, like a vibrator, to achieve an orgasm. (In the webcast the recommendation was for a high power vibrator if you are having decreased sensation. If this is really your first vibrator do you really need to start out with D cells or AC power? 😉
I need to sidetrack for a moment. In the webcast the doctor was bemoaning that all the sex drugs are for men (Viagra, Cialis, etc.) and that there is no Viagra for women. I am curious what Viagra for women would accomplish. For men it overcomes a physical problem. What physical problem do women want solved? Vaginal dryness is something a lot of women suffer after menopause, as well as other times, and there are lotions for that. If it is libido men battle that too and have to take hormones. I can’t see women wanting to take a pill for increased vaginal blood flow, but Viagra may help with that. What would female Viagra accomplish?
It always seems like it is the male that is the example of doing something wrong. No exception this time. A male said he had no problem getting an erection while masturbating, but had trouble when having sex with his wife. This is a perfect example of MS is not causing your problems. On the other hand, excuse the pun, he has some serious sexual problems since he would rather have sex with his hand. This is actually not that uncommon of a problem and they are seeing an increasing number of college age men with the same problem. Too much porn. So I would lay money he is addicted to his hand and photo shopped images of women. If you are addicted to a lie reality is a lot less fun. I am looking at the hand there and it is not doing much for me; probably not helping is that it is not my hand, and I am not left handed. 🙂 Good ‘ol Rosey; always available and always faithful. 🙂
Bottom line two things to take away. First and foremost communicate with your loved one about everything and definitely about sex and your desires and issues. Secondly, if there are problems look for the tools that will help with that specific issue. Finally it does not matter whether MS is causing the impotence, bladder dysfunction, or lack of vaginal sensitivity just get the tools you need to help with the situation.
Well not quite, but the current research says that pregnancy prevents MS. With our four little kids running around the house and wreaking havoc apparently that was very good for Eriksgirl. I liked this quote from the article “Researchers say they aren’t sure what it is about pregnancy that may be protective, but they have some theories.” My contention has always been that pickles and ice cream is disgusting, but maybe that and not the pregnancy have good, healing properties. I will not be testing my theory out on myself. Any volunteers for the pickles and ice cream study? -it is open label and you get ice cream!
So the bottom line is if you combine pregnancy, I mean pickles and ice cream, with the blood of a young virgin than you have some great tools to fight MS.