Nov 202012
 

Back in February I was contacted by someone wanting to discuss my MS condition and when I was born, etc. In my post I noted that Ron the astrologer predicted a flare up, with no personal information from me. Maybe he is psychic too. πŸ˜‰

Apparently per this article Ron was onto something. Neurologists now links birth month to your risk for getting MS. Paraphrasing the article if you are a Aries or Taurus you are in trouble, but if you are a Scorpio or Sagittarius you should be fine. No doubt some time soon your neurologist will use Tarot cards for treatment and diagnosis. I eagerly await my reading.

Less scandalously this is just another Vitamin D study and linking it back to pregnancy. I am all for blaming my parents but this is a bit of old news.

Nov 172012
 

For a few days I had pain in the balls of my left foot. I had this type of pain back in 2007 which my LLMD, at th\e time, blamed on gout. No surprise the antibiotics/antimalarials fixed the problem with no diet change. The pain had never come back until recently. Even though it had been years I immediately wondered if it was MS or Lyme. Probably just a weird pain. I am sure most people have weird pains occasionally. Having been diagnosed with a chronic problem I think my natural inclination is to “worry” more over normal pains/things. Maybe that is another complaint I have with the diagnosis. Nothing can be normal again.

Aug 262012
 

I think Canada study brings up a great question because in hindsight are interferons even a rational treatment? What are the interferons treating? Interferons are not the best understood thing in the body, but importantly they are already made in the body. Why when we are already making interferon b1a do we want to inject more? And if I recall it made out of Chinese hamster ovary cells. I was never checked to see if my interferon levels were low and needed boosting with a shot. Furthermore, in the body interferon is made as needed as an immune response to viruses, etc. Is the contention with taking the interferons that I have an infection that they will fixed. I certainly know the injections certainly never kept me from getting sick with other “infections.” Continue reading »

Aug 252012
 

Hardy any time passes before I see an article about someone signing up for a CCSVI trial or another trial proves it does not work. I was looking at my original objection to CCSVI today and was shocked that it has been three years. I am not surprised that the treatment is not working. How long will it take before they give this dead horse a break. The one thing I am very pleased with about CCSVI is that it was a new thought to MS. We need a lot more fresh thought brought in if any progress is going to be made. I give kudos to those willing to do the trial, but I think this one has run its course.

 Posted by at 5:54 am  Tagged with:
Aug 242012
 

That time of year for another neurologist visit. You would think it would be boring since all I am treating is my seizures. Since I have not had any seizures the medicine is working and I should just be in and out. That was not the case. I am not interested in treating MS at this time but the neurologist take is upon himself to do some neurological tests, etc., maybe so I get my moneys worth. πŸ˜‰ Continue reading »

Aug 202012
 

After years of not getting any comments or emails about Mannatech or Ambrotose I got an email a few weeks ago. Rather than a sales pitch it was a take down notice on some of my posts. That is a fist. Of course I never advocated the use of the products so the emails are SPAM or script junk. If they are scripts searching the web I would have also have expected Mannatech’s Ambrotose Saved My Soul to be included in the take down notice. πŸ˜‰ Against my better judgment I replied to two of these emails with no response. No doubt I will continue to get these junk emails.

For a product that could supposedly cure everything Ambrotose certainty came at a great price. Of souse they can not legally say that which had to hurt sales. What does the product do other than cure everything? Furthermore, while I am not going to take their product because I think it is junk feel free to give it a try. I do not think it will hurt you.

Transcript of the email below.


8/1/12
From: jbishop@mannatech.com
CC: mannatech_enforce@opsecsecurity.com

Subject: Cease and Desist

RE: Impermissible Use of Health Claims Attributed to Mannatech Products
http://blog.thesmithlife.com/?p=254
http://blog.thesmithlife.com/?p=340
http://blog.thesmithlife.com/?p=563

Mannatech, Incorporated (“Mannatech”) routinely reviews the internet to insure our products are being properly represented to the public. Health claims which go beyond the specific claims approved for Mannatech products and/or claims which state, suggest or imply Mannatech products cure, treat, mitigate or prevent disease are against Mannatech policies.

Your website (identified above) contains statements which are contrary to Mannatech”s policies. You are hereby requested to immediately remove from your website any statement which (i) states, suggests or implies Mannatech nutritional products prevent, treat or cure disease, (ii) states, suggests or implies Mannatech nutritional products are a substitute for a doctor”s standard of care, and/or (iii) otherwise violates Mannatech”s Associate Policies & Procedures.

If you have any concerns or questions relating to the issue raised herein please contact the undersigned at jbishop@mannatech.com. We further request that you contact the undersigned within five (5) business days from the receipt of this letter to (i) confirm the offending statements/representations have been removed from the website and (ii) confirm you will refrain from making such representations in connection with Mannatech nutritional products in the future.

The removal of this type of impermissible information from the internet is of great importance to protect Mannatech”s right to conduct business. Mannatech is prepared, if necessary, to take legal action to secure your immediate compliance with this demand, including litigation seeking injunctive relief, damages and attorney fees as allowed under Texas law. It is our hope, however, that you now fully appreciate our concerns and will take prompt action to avoid escalating the matter further.

We thank you in advance for your immediate attention and cooperation, and again stress the importance of complying with our demand and contacting the undersigned as requested herein.

Respectfully,

The Mannatech Legal, Ethics and Compliance Department

Note: Nothing contained in this letter shall be construed as a waiver of any rights Mannatech, Incorporated has at law or in equity, all of which are expressly reserved.

Jul 192012
 

I guess not based on how much I had to pay for Rebif, just worthless in efficacy in preventing long term disease progression. What I do like is that they used all records of people on the drugs and those off and compared results. Overall it was a fairly large study and can be repeated elsewhere. In the minimum it does not bode well for the Interferon users for MS.

I liked this quote: “Researchers are quick to point out that this is just one measure of these disease modifying drugs and there is still potentially significant benefit to patients.” Maybe I am missing something. I thought one of the key purposes of taking the drugs is to prevent disease progression. I certainly did not enjoy taking a shot, and would not consider it a benefit. I did not enjoy the site reactions. I did not enjoy the side effects. What else is left? I was even tested for Rebif antibodies because Rebif was not working that well at controlling lesions. Now we may know why! πŸ˜‰ Now I wonder why did did these drugs ever make it to market? Will the FDA just rubber stamp anything?

I am in the wrong business. I need some seed money to start a drug company. Obviously the drug does not have to be that safe or even work to get approved. I am thinking about sweet tasting pills like M&Ms but medicinal. πŸ˜‰

Apr 112012
 

No. Well maybe, but I would not know because I have never played Angry Birds. If it does I am willing to give it a try. Regardless I read this article about computers boosting brain power and thought they were not investigating anything new. Today the computers are helping our brains while beating us at Jeopardy and Chess so tomorrow they will rule the world. Well I welcome my computer overlords.

I was having a conversation recently with someone who was having memory issues and the doctor said it is gone forever you and only maintain. I told him I did not believe that, but you must exercise your brain. No one likes memory problems (unless you could selectively forget πŸ˜‰ ). You can mitigate memory issues by keeping notes etc. but there is a limit. I do not think the computer training are the solution. I think they used in the computer study the same thing I told him. You must exercise your brain and that is all the computers did. Sitting around all day watching TV or surfing the Internet is not exercising your brain. Worse than that I think some TV shows and some Internet sites actively destroy your brain. Read good books, play board/card games, etc. There are thousands of fun ways to exercise your brain. Do not blame everything on age or disease. Some memory issues may be the result of watching too much “reality TV”.

Apr 102012
 

As I read this blog post two things struck me. First the drug is Lariam not Larium (it is not a “U” it is an “A”). I usually expect my health care providers to spell the drug names correctly. To proceed and misspell it incorrectly six times in that post is pretty bad. So much for spell check. πŸ™‚ The bigger issue is that Lariam is a nasty drug with bad side effects. There are much better choices in antimalarials, such as Malarone, for treating those types of infections. Malarone is more expensive but you should not end up in a phych ward with suicidal tendencies. I knew that the military was/is investigating Lariam and the Afgan murders. I will be interested to see how that works out, but in the minimum it should concern you that the military thinks Lariam could drive you to that point.

My concern is that those who are treating persistent Lyme are somewhat “bucking the system” and thus willing to take riskier drugs. I know you want to be better, but be careful. The drug I took and was very concerned about was Levaquin. Levaquin is effectively a black box warning drug; as with all in that class. I was very concerned about permanent damage and I do not think I was getting a good return on my investment in that class of drugs.

As always be informed about what you are taking and ask questions. Lyme doctors are already going to be living on the edge of treatment protocols so if you are seeing one be extra careful. Do not be afraid to ask questions, ask if another drug would work as well, or just say no.

Apr 062012
 

Teva is rushing to get an oral MS drug to market, and their drug is about as effective as a sugar pill. Today I read an article, although a little old, taking the stand that Laquinimod is an effective oral treatment for Multiple Sclerosis. I think the author is a shill and it was basically a paid advertisement. On the other hand Laquinimod while probably being a very expensive sugar pill will hopefully be a lot safer than Gilenya. I have no doubt that Gilenya is effective, but it may kill you in the process. Laquinimod sounds like a drug you can feel safe taking.

Also, I am apparently in the wrong business if you can sell sugar pills to people at exorbitant prices to make them feel better.