Dec 302011
 

As I was choosing my insurance plan for 2012 I was reviewing the drug coverage, etc. Other than a slight rise in cost I noticed that they excluded Ampyra for Multiple Sclerosis. I was not aware of this drug, probably due to it being recently approved for use in Multiple Sclerosis. This drug continues along the line of drugs providing symptom relief rater than treating MS, but it did sound promising. When I read about it on Wikipedia the overdosing did not even seem that bad since I already suffer from seizures and paresthesia (all though there is always room for those to get much worse) but I do not want an abnormal heart rhythm. For those who would benefit from this drug this one sounds pretty low risk.

Dec 292011
 

As I have posted before on the CCSVI issue, I think it is extremely unlikely that blood vessels are the cause of Multiple Sclerosis. While this is not new news I did see an article saying the same thing. Or paraphrasing their words we are getting a lot of evidence to support that there is no evidence to support CCSVI as a cause for Multiple Sclerosis. I am sure there are some cases where the veins are an issue, but those are few and far between, and that would not be Multiple Sclerosis but some other disorder. NMSS is continuing to investigate what I would have considered a dead end project but their views are a little different (maybe it’s hard to turn away grant money?). Reading through some of their early findings the control group had a significant amount of CCSVI too. What we learn from this is that almost everyone has CCSVI, and needs to eat better.

Dec 282011
 

And have a Happy New Year

 

Should auld acquaintance be forgot,

and never brought to mind ?

Should auld acquaintance be forgot,

and auld lang syne ?

 

In typical fashion posting a little late, and a little early. May everyone have a blessed new year, and may the new year find you well.

 Posted by at 10:28 am
Nov 172011
 

The issue with not being able to post comment on the blog has been fixed. This was a bug related to changing hosting providers. Sorry for the inconvenience. If you are still having issues please send me an email at erikmsblog at gmail dot com. Other than the comment issue I think the move was a success and the overall performance is significantly better. Once again sorry for the comment posting problems.

 

 Posted by at 9:00 am  Tagged with: ,
Nov 172011
 

I received an email from a friend that bemoaned the ills of Aspertame. She qualified it will that she checked Snopes and Snopes said it was all false so I did not check its validity. She went on and added her personal experience with Aspertame and her related vision issues. Snopes can be good or not so great depending on the topic; I think XKCD said it best.

Two thoughts: First is that there have been plenty off damning things coming out about Aspertame for many years so Aspertame is definitely not all roses and sunshine. To go along with that I highly recommend the video Sweet Misery available on Hulu. Certainly the documentary has a bias, as all documentaries tend to, but well worth seeing. Secondly, and something my friend discovered, it does not matter if everyone tells you something is safe, or that something will fix all your problems, or if some product is just culturally normal. If you personally respond differently than expected than you need to take appropriate action. Equally important and relevant to the Aspertame do not rule out something as a problem just because lots of people (doctors, friends, etc.) have deemed it safe or beneficial. If you are having problems than you need to evaluate your response to your medicine, diet, environment, etc. You are vested more than anyone else in how you feel and you will know more than anyone else how you are responding to something. MRIs and blood tests can not do as good of a job of measuring your overall well being and overall “how you feel” as you can. Be attentive and vigilant to feel better.

Nov 162011
 

I received an email recently asking my present condition, and whether I had MS and Lyme. The concern from the author was she had been treating Lyme with some degree of success and is now getting worse. I shared an experience of someone I know which seemed relevant. This other person had also been treated for Lyme, but had not gotten significantly better. He eventually went to Dr. Shoemaker and he recommended they test the house for mold; and it was discovered they had a very toxic form that needed to be fixed. While taking care of the mold, moving, and taking new medicine helped he was still having significant problems. At a future appointment Dr. Shoemaker suggested he go on a gluten free diet for a few months. During that time there was massive improvement. He continues to remains gluten free because any gluten causes sickness, fatigue, etc.  As a reminder to everyone to be wary of doctors offering advice and no solutions because he has been told by other doctors after the improvement off of the gluten products that he is not gluten intolerant but offered no other good solutions.

My point to the author of the email was not about gluten or the mold but that you can have more than one problem. If you are not getting better or are getting worse than you need to evaluate your treatment and maybe the diagnosis. Many things can cause fatigue and just because you have been diagnosed with Lyme, MS, etc. doesn’t mean something else isn’t causing the fatigue, etc.; on the other hand it could just be Lyme or MS. Be diligent and fight to be well.

 

Sep 032011
 

For the few who do post unfortunately I had to add a Captcha because the SPAM has gotten out of control. I have included a dump of how the SPAM has continued to grow on the site. 🙁

I took a cruise with Eriksgirl a couple of years ago. We met someone on the cruise and I could tell by the way he talked, and he certainly did not volunteer very much information, that he was into a questionable Internet business. I talked with Eriksgirl about it and she fully agreed that whatever he was doing it was questionable at best. I thought at the time it was probably sending Spam. I knew then that if that was what he was doing I would have thrown him overboard into the middle of the ocean. Maybe I should have asked so we could be down by at least one.

On another note I have not been happy with my hosting provider for a very long time. I will hopefully get the site moved to a new provider within a few months and it will at least be a little faster.

 Posted by at 10:02 am  Tagged with:
Sep 022011
 

As I posted in a comment. I am not all better but I have remained remarkably stable. As I have noted before I am much better than I was when I started and I am no longer having relapses, etc. The Lyme treatments I took made a significant difference, but I eventually did not notice any improvement. On the other hand I do still have lesions on the brain. If the lesions are caused by MS, Lyme, or something else I do not know. At this point they appear to be silent lesions and I am neglecting them for better or worse. For quite a while now I have not been taking any treatments. I, of course, still see my neurologist for treating my seizures and he still disagrees with how I am handling my Lyme/MS treatment; some things will never change. For now it will be more of the same as far as treatment.

Best wishes to all of you as you seek answers and are looking to get better!