Sep 122010
 

It is making the news that imaging contrast can be dangerous. As to the recent complaint making the news this is nothing new. I picked one of the agents, OmniScan, and a similar warning came as early as on the December 2007 label: “Acute renal failure has occurred in patients with preexisting renal insufficiency. Use the lowest necessary dose of OMNISCAN and evaluate renal function in these patients .” Must have been a slow news day.

Also, and what is not in the article, is that gadolinium is extremely toxic in its pure form. The drug companies bind gadolinium to another compound to make it safer and so it will leave your body quickly. Obviously contrast is not something you want to be taking. Looking just at OmniScan long term health effects (i.e. cancer) were not studied so it is hard to tell if it has long term health effects. Regardless, gadolinium based contrast is probably not a great drug for anyone to take. As Eriksgirl noted when I was talking to her no one is getting an MRI for fun, it is for something serious. In the end it becomes one of those necessary evils.

Sep 082010
 

After reading this article I realized that my mother is to blame for my health woes. I know the article tries to downplay that coldness does not cause future problems, but how many times can you be told to “buck up buttercup” without future repercussions. This explanation for MS seems much more plausible than iron issues. I guess Eriksgirl will have to quit saying “dry it up nancy!” to the kids, and preferably to me too. On a plus side it did not mention dads so I can continue with my walk-it-off protocol.

Sep 072010
 

Early last year I went to the LLMD and it was the same type of normal appointment. You would almost think this was a follow-up appointment to a physical; “You are doing great. Keep up the good work and I will see you back in a year” is the general tone. Before being dismissed with a pat on the head I told him we were having trouble getting pregnant with our next child, little Aria, so I asked if Lyme impacted fertility. Without answering the question, but looking at my other three children, he flippantly said something to the effect of you do not seem to be having any problems. Fool!

I had then been taking two antibiotics for at least a year. I was not happy with either and did not think they were doing anything to help me. The two antibiotics he left me on were Minocin and Flagyl. (Sure, I could have asked him to modulate the antibiotics but what am I paying him for? It worked out for the best.) A month after the appointment I did some more detailed looking at both drugs. As it turns out Minocin can impair male fertility. That would have been the kind of side-effect information I would have expected the doctor to know and share; rather than shooting off flippant comments.

At this point unhappy with my treatment, and seeing it is only causing problems, I stopped all antibiotics. We both assumed that the Minocin had done significant fertility damage and it would take months to recover my lost fertility. In reality it did not take that long and little Aria was soon on her way. In the end the Minocin almost certainly paved the way for Aria to be a girl since Y’s are supposed to be more fragile (insert favorite male joke here). The additional bonus amidst this is I got off two drugs that I definitely did not need to be taking anymore.

Maybe the doctor was keeping me on Minocin because I had to bring my kids to the appointment. Were the kids frustrating him so much that he was attempting to chemically sterilize me? Maybe this is just best to apply Hanlon’s razor.

Sep 042010
 

Based on what I have heard I expect the change to Shoemaker to be a significant change in protocol. I am used to taking antibiotics like Chiclets but I believe Shoemaker is a short-course antibiotic therapy doctor. If that is true for him than I am sure I am done with my antibiotics while under his care. That is certainly one thing to be very thankful for. I think his focus is on removing the toxins, lyme, etc., from your body.

To be fair I had been taking antibiotics and not seeing any improvement. I saw an initial significant improvement and then it just stopped. I continued with the antibiotics for a while hoping it would put me over the edge, but it never did. I quit all treatment because it was not helping. I hope this change makes some needed additional progress.

As it notes on his website he uses cholestyramine (CSM) to help remove the toxins from your body. I have taken CSM before and felt better while taking it. I stopped the CSM for a number of reasons. First, I was prescribed CSM to improve my contrast resolution, but I never saw a noticeable improvement. 😉 Secondly, CSM is somewhat vile to take. Lastly, I grew tired of having to coordinate taking it at an odd time safely distant from my antiepileptics. As a bonus the CSM constipation went away. I think you may need to live on prunes while taking CSM,

Sep 022010
 

I have been slow to post, as always. Aria Faith joined us a while back and is doing great.

At Birth:
9 pounds 14 ounces
21.25 inches

Now:
Much Bigger 🙂

 Posted by at 6:05 am
Sep 012010
 

We have decided to go with Dr. Shoemaker. At this point I am still in the pre-appointment stage. This entails collecting all of my medical records and making a time-line of my health issues. Eriksgirl has been doing a great job coordinating the records collection and is actually writing the time-line. We have a good friend that works in a medical office so we have been able to get the medical records for free so far.

We are still waiting on the records to trickle in so we can send them off for Shoemaker to review. Once he reviews the records he can assess whether he can be of service. I think his process is good. He has a good process and he hopefully will not waste my time if he does not think he can help.