Apr 092007

Everything is pretty stable at the moment as I continue my wait to get into some doctors. I may never understand the mandatory wait when I am sick now. I guess my sickness isn’t going anywhere so I can stand to wait. Ugh. I currently have 3 appointments (only one local) with possibly two more to be added (one of those is “just” a long car drive away).

On a side note my continuing research into Lyme seems to indicate that alternative treatments will play a much larger role than they did with Multiple Sclerosis. Realizing I probably come off anti-alternative treatments with my continued Ambrotose/Glyconutrient bashing (which, by the way, I never heard back from that one email asking how glyconutrients can cure Lyme); I do think that alternative treatments have an important place. For MS I was (and I still am) taking Evening Primrose Oil (EPO) and Fish Oil (better than eating fish; yuck!). I’ll write more on the more extensive alternative treatments I choose after talking to some doctors to see how they will best complement the treatment.


  3 Responses to “Quick Update”

  1. Erik, I’m in exactly the same boat that you are. I did pay for the IGeneX tests (and now have to fight with insurance for reimbursement, which probably won’t happen), and I was equivocal on the IgG test, but positive on the IgM test.

    Fortunately for me, I live in Colorado Springs, and we have one of the country’s premier chronic disease specialists here (Rocky Mountain Chronic Disease Specialists), and I was able to be seen.

    Rather than single, high-dose antibiotics, the newer approach is to use slightly lower doses, but combine several antibiotics (in my case, it will be Rocephin, Zithromax, and Flagyl). This seems to be more effective and less harmful in the long term. He’ll be publishing these results soon, if he can free up some staff to collect the material.

    Good luck to you, and I hope it works out well.


  2. CJ,
    There is no way I could get the ins. to pay for Igenex so I hope it doesn’t come to that. I agree that I like the modulating therapy, but we’ll have to see how it all pans out.

  3. Hey! Lonnnng time! I’m sorry I haven’t checked your blog lately. I checked for a while but there were no updates for quite a while so I thought maybe you died (not really.) Actually, I got really behind on blogs when we had our 5th baby 11 weeks ago. See my blog and you’ll see how adorable he is!

    Is your comment about an email pertaining to Lyme and Ambrotose meant for me? I’m gonna keep scrolling through your blog to catch up but wanted you to know that IF it was, I never got an email from ya. Feel free to shoot one to me, though – theglycofamily at gmail dot com

    Anyway, it just so happens I was looking through my sitemeter at ways people found my blog. One was through a search term that actually had BOTH of our blogs listed in the results! THAT is how I got back to looking here! Neato, huh??

    Sorry for all the crappy feelings lately. Hope you’re feeling better soon!

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