I have visited with the first of the Lyme doctors. Overall it went well, and I liked him (and he came off as extremely flexible with treatment). He could feel that I have an inflamed liver and spleen. He also listened to my heart and I have a Mitral Valve prolapse (apparently there is a click after a beat that can be heard). He also looked at my eyes and noted that they looked a little inflamed, and the optic nerve looked a little fuzzy at one of the edges. No surprise since I have been having a problem with my distance vision. He also noted that I am having a reaction when pulling up on my toes that my foot quivers, but I can’t remember what he called that neurological reaction.
His treatment is to start with a month of Ceftin, and then proceed with IV Rosephin(?) if I’m not better. After looking up Ceftin and Rosephin they are both Cephalosporins. I am sure they can be effective against the spirochete, but I have concerns that they would mostly throw more of the Lyme into a cell-wall-deficient (CWD), L-Form, bacteria state (more on CWD form later). This would then be much harder to treat, and there are concerns that the CWD form of Lyme causes the most disability. Unfortunately, I did the antibiotic research after getting home so I was unable to ask this in the office. The other concern is that he is not necessarily a Lyme specialist, though he does treat a lot of Lyme. In fact he was incorrectly diagnosed with Multiple Sclerosis at one point, but, like me, has Lyme. A positive was that he immediately recognized the Bartonella rash, and suspects that I probably have other co-infections that would have to be treated. A negative was that I was left with the impression that he treats to get you symptom free (which is not necessarily Lyme free), and will treat again if/when symptoms occur.