Apr 222006
 

Now that Paula.Rothstein@medicinefreeliving.com has both SPAMed my email, and the blog, maybe Natural Cellular Defense will be the next Ambrotose! 😉 The name of her site did make me think of the emails (from fellow MS’ers) advocating going medication free, and spurned this post as a corollary to Death Before Disability. I have wondered if Rebif is harmful over the long term, and Eriksgirl and I have had many conversations (some very recently) about its safety. Of course everything seems to indicate that it is probably OK, but in the end it is operating as a immune system depressant. The Tysabri combination trials certainly reiterated what can happen when the immune system is suppressed too far, but what happens long term with just a little (well at least less than the combination therapy). Am I going to be worse off because of taking Rebif with a nasty cancer, or some other disease, that in the end is much worse than the Multiple Sclerosis? In my experience I’ve never found any medical intervention to be a “free ride.” Certainly not thoughts that get me in the mood to take my injections. I guess on the plus side I took the week off from injections as I was recovering from a viral infection, and didn’t want anything slowing my recovery!

  12 Responses to “Taking From Tomorrow to Pay for Today”

  1. Now this is interesting. I sent an email to you with the question and information subsequently placed on your blog after YOU asked me to put it in the blog instead of email! I have absolutely no desire to spam anyone and sent a very sincere email to you. Mostly interested in whether or not you knew of the Splenda connection to MS and curious as to whether or not they looked for Lyme Disease when diagnosing your condition. I have a mother-in-law with MS and have developed an interest in the subject. By definition, spam is irrelevant information. For example, I have a blog about disease and someone dropped in with a comment on his plumbing business, leaving his contact information. Now THAT is spam. You publish a public blog acting as though you have some sort of interest in entering into a dialogue with interested individuals and then accuse them of spamming you! I am sorry you have had a bad experience with someone pushing their product on you but I am not about to accept your accusatory slap just for a brief mention of a product entirely relevant to your situation.

  2. No, I did not ask you to write something on the blog; especially something not relevant to the post. I asked if I could write about what you said: “May I blog about your email?” You did ask those questions, much like the post, and then you talk about Natural Cellular Defense, your product.

    I get tons of unsolicted advice via email. I don’t get upset if the person offering the advice has Multiple Sclerosis, but in the end it is rude to offer unsolicited advice. In the end your email, and post, was unsolicited advice (with no supporting material) and a product advert – counts as SPAM in my book.

  3. Ms. Rothstein,

    I think you missed the point. You are selling a product. You are not someone who comes to the table without something to profit. You have a motivated interest in getting people to hear what you have to say. You did not come citing studies, or offering up any kind of academic issue that is relavent to MS.

    Even when you offer a product that is MS related, to post your connection and use Erik’s blog to get people to your site, i.e. getting your hit numbers up, that isn’t right. There are lots of folks who sell pills, conconctions, and various other things that will “cure” MS. The sad thing is that rather than even trying to build up some kind of relationship, you run by and leave your “message” or spam as I would also call it. I don’t think you can appreciate how much of this stuff happens to Erik because he does have a public blog. Do you have any idea how many “cures” and “causes” we have seen from people “interested in engaging in dialogues”. If you had read other parts of the blog you would see that Erik is open to studies, citiations, anything of SUBSTANCE. A few people feeling better from taking a sugar pill doesn’t help anyone much. And really, if you can’t offer that kind of information, then you can’t really defend your product. Maybe your in the early stages, I don’t know. I wish you all the best, and I would love for MS to come down to some connection to heavy metals and lyme disease with a little splenda on top. BTW, since I doubt Erik will answer this, he has been tested for lyme disease (no he doesn’t have it), we don’t use fake sugars of any kind (although I have seen tests on splenda and it looks the safest of all of them), and he did not eat paint chips growing up. (tongue firmly in cheek, not trying to be rude)

    You did not even put your post with an on topic discussion. If you had read Erik’s blog at all, rather than just passing by, you would know what little tolerance he has for this. A good portion of his readership, and who he blogs to, are folks who are newly diagnosed or who are getting on with life having MS. He doesn’t want people coming here thinking there is a magic answer or pill that will fix things. That is not the case. You will have a hard time convincing me that all of science is ignoring your product or whatever… Drug companies fighting you… 🙂 (mdmhvonpa, please don’t tell the Mrs I said that!)

    Regardless, I am sorry that you feel offended, and perhaps you feel like Erik jumped the gun calling you a spammer, but you cannot begin to appreciate what things appear like on this end. If we only had a dollar for every cure, pill, treatment and cause he has been sent…

    Sincerely,
    Brandy Smith

  4. Duly noted. I do mention the product in email but should have deleted that portion once I was on your blog which is my rule. I am actually interested in your thoughts on questions posed re: Splenda and also Lyme Disease. Best wishes on achieving optimal health.

  5. Hey Erik,
    I would be aware that it seems that these people who are anti-science, anti-medicine, anti-pharm are begining to sound more like a religion, which is monetarily profiting from producing “converts” (by the way, this is in response to your blog entry, not the current spammer trying to convert you at the moment).
    I finally got some info on what “glyconutrients” are/claim to do and put up a post on it if you are interested in an opinion from someone not trying to sell you something.

  6. Someone should sell tickets.

  7. Beth,
    As I posted on your site. Blogs are an excellent forum for flame wars. I guess put on the asbestos suit and go on. 😉

  8. Erik,
    I was reading over the paragraphs you wrote. I too have MS, strange thing is that I was diagnosed 5 months after leaving the Splenda plant. I was and Engineer there at the manufacture plant. Around the concentrate all the time. Best of luck with your situation.

  9. Dolomite,
    I don’t know. I thought splenda was “safe,” but I am certainly no fan of the fake sugars. Good luck!

  10. Dear Eric,
    I am a physician in the Dallas area practicing alternative medicine. That is, alternative to pharmaceutical drugs and unnecessary surgical interventions. I came across your blog while researching on the web. Here are my two cents on the subject of MS. As an auto-immune disease, Ms has mutltiple etiologies. Certainly both Slenda and aspartame are suspect. As are Lyme Disease, mercury, dental infections, etc. I have found the primary cause to be Lyme Disease, which is pandemic in the USA. The most effective treatment for Lyme Disease is Ultraviolet blood irradiation and ozone therapy along with TOA Samento and Natural Cellular Defense. Diagnosing Lyme Disease is difficult as the current tests being offered by medical labs are inaccurate. This must be done by a skilled dark field microscope operator. I urge you to look to alternative therapists for your cure. Pharmaceutical drugs which poison the metabolic pathways in the body will only make your condition worse. Good luck my friend.

  11. I, too, just want to emphasize the importance of being evaluated, not only tested, for Lyme disease. By this I mean that the tests are extremely unreliable and many cases must be clinically diagnosed. If I had a M.S. diagnosis I would go immediately to a “Lyme-literate” physician for a consultation. Certainly not all cases of M.S. are actually Lyme, but many many are just that indeed. I can’t imagine it wouldn’t be worth checking into. I repeat, however, that testing is unreliable. Labs that specialize in tick-borne diseases have more reliable tests than other labs, although they are still imperfect. God bless.

  12. May be splenda is good sugar.but i belive on what doctor advice.

    —————

    kate

    Drug Intervention Florida

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