Dec 212005

I remember seeing this list of things that people searched for that brought them to the blog (though I no longer remember the exact string, this was the gist of it). I guess there is no way to know what they meant by the search, but this is my 2¢. For me life is pretty much the same, with the addition of injections and the occasional relapse. I think that it is this way for most people that there are some adjustments that need to be made, and then you just go on with life. Certainly the adjustments may have to be larger or different depending on your circumstances, but life still goes on. I think there is the perception that if you get diagnosed with a chronic illness that your life is suddenly over, and nothing will ever be the same. I categorically reject that assessment. You may require some assistive devices, and some help, but life as it was should pretty much be life as it continues to be – I hope you liked your life before the MS. 😉

 Posted by at 4:02 pm

  5 Responses to “What is Life Like with Multiple Sclerosis?”

  1. For most fighting this affliction this is true. With a little help, here and there, we get by in pretty much the same fashion. Nevertheless I pray for the end of this disease and for the comfort to those who the disease slams down hard. My life, personally, was most certainly different before but, with a little adjustment we can push forward and regain a feeling of somewhat ‘normal’.

  2. Hmmm, it reminds me of ‘Life before children’. Nice, but different.

  3. I would agree with you- except for that it only applies to those who have started treatment!
    It would also not apply to those who have progressive form rather than relapse remitting.

  4. I agree with a lot that has been said. I think that mdmhvonpa said it is like before kids nice but definitely different.

    Beth hit a nail on the head for me also. I have Progressive Relapsing MS and this year have had 7 confirmed relapses which honestly sucks!!!

    But I am still here and for the most part can do almost everything I used to whether I am in my wheelchair or not.

    So life with MS well it is just life!!!

  5. For me life with MS is hard to tell apart from life without it…because I also have a brain tumor. It is hard to tell the difference between what is MS and what is left over from the brain surgery.

    The tumor was benign, so it is all good. (Like a brain tumor could ever be good. LOL)

    I also take Rebif but it is brusing me a lot lately and it seems to be painful. Is it painful for you? And no, I am NOT skinny. DX 10/03 on Rebif 10/03


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