I checked out the Maffin’s Multiple Sclerosis podcast today, and I was VERY impressed. Kim, and Tod, are definitely better speakers than I’ll ever be. Warning the file (show 2) is large at around 13MB – so beware dial-up users.
The most significant aspect of the podcast to me was the discussion of the things other people say. While I certainly don’t have anything as extreme as someone coming up with the eyes, I do have people come up and ask “How’s the MS” in their most pitiful voice and pitiful look. It makes me want to answer that I’ll be dead in a week or something equally horrible. On the other hand I think that they are fishing for bad news, for whatever sick reason, and I won’t give them the pleasure. In fact my policy is not to discuss specifics of the disease with strangers – except through the Internet (of course) or if they have a vested interest. Otherwise we’re not going to focus on a negative aspect of my life.
On a side note, though an unnecessarily painful hospital experience, Nate is home and doing well with his surgery. We’re definitely quickly heading to a family easy trek now that we’re over the hump with Nate.