Jul 232005

Came across this article today about a widowed husband who is suing because they should have known Tysabri would kill his wife. I’m very sorry that he lost his wife, but his claim that he didn’t know it suppressed the immune system is a bit absurd. All I can think is that it was willful ignorance on his part that he didn’t know that is how the drug worked. Furthermore, they voluntarily signed up for an EXPERIMENTAL drug. I’m sure there were numerous forms warning that it may kill her. I’m sad that people died in the trial, usually the drugs just don’t do anything, but suing because the drug was too powerful is a bit of a stretch; especially when it was certainly a calculated risk! Article: Widower sues over wife’s death during trial for Biogen drug

 Posted by at 11:15 am

  7 Responses to “Lawsuit Over Wife’s Tysabri Related Death”

  1. I really don’t believe the guy has any right to sue either. But I was one of those ignorant people you refer to when it came to Tysabri. I researched all I could about the medications available and thought that Tysabri worked by blocking the blood-brain barrier. I saw an animation showing these little chemical plugs taking their positions. I told my neuro that I didn’t want to suppress my immune system so I wanted to have Tysabri prescribed for me. I was quickly informed that it did indeed suppress the system. But I am also a skeptic, and believe that doctors don’t tell you much of anything unless you ask or in my case show them how you are misiguided. That is why it is so important for us to be informed. But my searching on my own did not give me the correct answers. Probably it did but I refused to see it because I wanted something that wasn’t being offered.

  2. I think I knew at one time how Tysabri worked but the bottom line is keeping the immune cells out of the brain. The funny thing is that before it was released I was worried about viral meningitis – which I was told that wasn’t a concern. As it turns out it was so much worse (at lest as a combo drug!).

  3. Also, I’ve found the videos misleading that the drug companies put out. I think they have a vested interest in oversimplifying the issue. Besides, short of being an expert in neuro-immunology I’m not sure anyone really understands these drugs – definitely myself included! 🙁

  4. So I’m not the only cynic here, eh?

  5. Difficult one to comment on but hopfully her death might fine tune the research into other ways of finding a cure! We can only thank her for trying and wish that no more deaths happen this way.

  6. Hate to diminish your trust in the medical world, but I doubt most MD’s know the mechanism of how these drugs work. Maybe some of the top specialists do, especially if they are involved in the research, but your run of the mill GP and neurologists know how to diagnose and how to prescribe medication and that is about it. It is the PhD’s who develop these drugs and understand how they work, not the MD’s. My GP put me on amtriptylene and since I have a PhD in physiology I was curious how it works so I asked my GP and he got all nervous and said he learned it in med school, but didn’t have to know how things work- just to diagnose

  7. Beth,
    I agree that my neuro is not an expert in neuro-immunology. This is probably relagated to the MS researchers.

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