Apr 282005
 

Came across this article the other day, “We shall overcome: Teen multiple sclerosis sufferer fighting to beat diagnosis,” and it was a little depressing. While I know it does happen, and I’ve exchanged a couple of emails with a 16 yr. old with MS, it certainly is not something that you want to see. On the other hand it looks like she has a really good outlook on the MS, which can be rare even for adults. I certainly can’t say that I have never cried over my MS, it was certainly a lot to take in at first.

 Posted by at 7:29 pm

  4 Responses to “15yr Old with Multiple Sclerosis”

  1. I wonder if there is any sort of organization that pairs up younger MS people with older MS people, sort of mentoring thing. I don’t know if I personally have the perspective on it to be of much help, but I think it could be useful for kids who are trying to imagine the rest of their lives.

  2. Like a mentor program? It would probably be a good idea for MSAA or and organization like that.

  3. I agree! Great idea Stephen!

    Sincerely,
    Brandy

  4. I had my first MS attack at 15, I remember exactly when and how it felt, and it was just like attacks I’ve had since so I know now for sure what it was.

    Back then (’86) with no MRI or anything like that, doctors didn’t believe I was really sick. They said it was all in my head. It took me until the age of 27 to get the right diagnosis at last! And about 10 doctors. I had to fall over and go completely out on the left side (they thought I was having a stroke) to get them to take my symptoms seriously!

    It’s good for this girl that she knows what it is, and that she is validated in what she’s going through.

    I had so many misdiagnosis in the years before they finally figured it out…if I had a dime for every doctor I saw I wouldn’t need Soc. Security LOL.

    Keep fighting the good fight, people…don’t let the MonSter win. I’m not gonna. Thanks for blogging about your experiences and sharing them and info with us.

    hugs
    Ro

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