Oct 262004

After the anonymous post¬†about fear of side effects I decided to go into a little more detail. I wish I had more details on the specific fear so I can better address that from my experience. I am surprised a doctor would continue to see someone who would not take treatment (as opposed to not being able to take anything which is a different story as some here know all too well) because I know my neuro would discharge someone for that because there is nothing he can really do for you. The side effects for me only lasted a couple of months (where they happened after every injection) and while they did resurface a couple of time Serano thinks that is an allergic reaction. Serano even cited the example of a nurse there who couldn’t have alcohol on injection night – though that certainly wasn’t my interaction issue. When I did have the side effects they were the chills for about 30-60 minutes about two hours after the injection and was warm in the morning for about 30-60 minutes.

Per the post I assume that “Hard Hitting” means the immuno-suppressing (rather than Disease-modifying like Rebif or Copaxone) and thus is referring to Novantrone or Campath-1H. I would be surprised if that was something a neuro was considering immediately with Relapsing-Remitting before trying one of the ABCR drugs first. As far as Campath I would never take that since that opens the body up to life threatening disease – I don’t want my treatment to kill me. While there is less of a risk of that from Novantrone it is still a possibility and so I would probably not take that unless I got really desperate.

Hopefully Anonymous Poster will either comment here or drop me an email so I can better address their concerns.

 Posted by at 8:55 pm

  One Response to “Side Effect Fear”

  1. IMHO, the “side effects” of MS are potentially much worse than the side effects of MS meds. Made the decision to start treatment very easy for me.

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