No. Well maybe, but I would not know because I have never played Angry Birds. If it does I am willing to give it a try. Regardless I read this article about computers boosting brain power and thought they were not investigating anything new. Today the computers are helping our brains while beating us at Jeopardy and Chess so tomorrow they will rule the world. Well I welcome my computer overlords.

I was having a conversation recently with someone who was having memory issues and the doctor said it is gone forever you and only maintain. I told him I did not believe that, but you must exercise your brain. No one likes memory problems (unless you could selectively forget ;-) ). You can mitigate memory issues by keeping notes etc. but there is a limit. I do not think the computer training are the solution. I think they used in the computer study the same thing I told him. You must exercise your brain and that is all the computers did. Sitting around all day watching TV or surfing the Internet is not exercising your brain. Worse than that I think some TV shows and some Internet sites actively destroy your brain. Read good books, play board/card games, etc. There are thousands of fun ways to exercise your brain. Do not blame everything on age or disease. Some memory issues may be the result of watching too much “reality TV”.

 

As I read this blog post two things struck me. First the drug is Lariam not Larium (it is not a “U” it is an “A”). I usually expect my health care providers to spell the drug names correctly. To proceed and misspell it incorrectly six times in that post is pretty bad. So much for spell check. :-) The bigger issue is that Lariam is a nasty drug with bad side effects. There are much better choices in antimalarials, such as Malarone, for treating those types of infections. Malarone is more expensive but you should not end up in a phych ward with suicidal tendencies. I knew that the military was/is investigating Lariam and the Afgan murders. I will be interested to see how that works out, but in the minimum it should concern you that the military thinks Lariam could drive you to that point.

My concern is that those who are treating persistent Lyme are somewhat “bucking the system” and thus willing to take riskier drugs. I know you want to be better, but be careful. The drug I took and was very concerned about was Levaquin. Levaquin is effectively a black box warning drug; as with all in that class. I was very concerned about permanent damage and I do not think I was getting a good return on my investment in that class of drugs.

As always be informed about what you are taking and ask questions. Lyme doctors are already going to be living on the edge of treatment protocols so if you are seeing one be extra careful. Do not be afraid to ask questions, ask if another drug would work as well, or just say no.

 

Teva is rushing to get an oral MS drug to market, and their drug is about as effective as a sugar pill. Today I read an article, although a little old, taking the stand that Laquinimod is an effective oral treatment for Multiple Sclerosis. I think the author is a shill and it was basically a paid advertisement. On the other hand Laquinimod while probably being a very expensive sugar pill will hopefully be a lot safer than Gilenya. I have no doubt that Gilenya is effective, but it may kill you in the process. Laquinimod sounds like a drug you can feel safe taking.

Also, I am apparently in the wrong business if you can sell sugar pills to people at exorbitant prices to make them feel better.

 

As I have been reading all the stories lately about the growing lotto jackpot size, and ultimately went up to $500 million I thought it was worth discussing. I have played the lotto in the past and no surprise lost the lotto. I knew going in that I was going to lose, but it was only $1. I wanted some images to go with this post and I had some unredeemed lotto scratch offs that I received as a gift so I “reinvested” those into the lottery. I met a guy in line and we briefly discussed the lottery, and he commented that people who play the lottery are bad at math. I have thought that for a while. He also said that if he had won the big lotto he would have bought all the pants in the world; so we could all be pantless? I was glad he lost and was wearing pants; sometimes it is the small blessing you never even knew about! I told him other than being bad at math I think people play the lotto out of desperation and hope. In the end rather than being a “poor tax” or a “bad at math tax” it is probably a “desperation tax”. Sad.

MS has mostly been a frustration for me unlike many other people who have it much worse. On the other hand I think people play the lotto with their MS treatments too. I think the treatments themselves become a source of hope. At least I am doing something. I remember feeling that way when I started Rebif that it would stop the progression, and the disappointment when it was not working well. I quit Rebif because it did not work and it was a disappointment. As critical as I am of Tysabri I would probably be giving it a try if I was steadily declining. It is possible that I would consider taking Tysabri even if I tested positive for anti-JCV antibodies. Unlike the lotto with MS drugs you stand a much better chance of something happening (and much like lotto winners always go bankrupt MS medication can help get you to bankruptcy). It is sad that desperation sometimes drives our decisions.

 

I was talking to Eriksgirl the other day about doing the MS walk this year. We have been out of the loop for a while and it would be nice to do it again. Plus we could pick up some swag. As it turns out we are a little late making our plans and our schedule conflicts. We will have to plan for next year.

Today, following on the heels of that, I got the annual MS 150 fundraiser email from my coworker. Please send a donation his way. I remember talking to him about his MS ride not long after my diagnosis. Wow, how time flies. I noticed, from his email, that this is his fourth year as Ride Marshal, the same length of time since my diagnosis with Lyme. Maybe someday I will do the 150 too, but again it will not be this year. Kudos to Chris!

 

Over the last few month I have been contacted a few times about writing guest posts for the blog. The first one fell through before it got submitted, and others just die. The one that posted on Wednesday was proof that the process can work. Normally I would not allow the Health Science type post because it is too off topic (If it is going to be off topic it should be me ;-) , but it was a good starting place for guest posts. If you are interested in writing a guest post just drop me an email: erikmsblog @ gmail dot com.

 

By Jocelyn Salada
Guest Contributor

Research into areas of science like chemistry, physics, biology, and robotics continuously produces new and exciting knowledge every year. How we apply that knowledge, of course, is up to the fancies of a completely different subset of disciplines. Applied science takes theoretical knowledge and hews it into something usable in real world situations. In our quotidian lives, few applied sciences factor more into our well being and life expectancy than health science: loosely defined as the application of research-oriented sciences, such as in the aforementioned disciplines, into the health and care of humanity.

Modern Health Science

Armed with the technologies of the day – smartphones, high speed Internet access, the Internet itself – a physician has access to a vast repository of information. With these tools in hand, an average family healthcare provider is better equipped to deal with rare and previously unseen diagnoses: before, in such a situation, a family doctor had only his own expertise and experience to rely on. Putting the most current information into the hands of primary care physicians is tantamount to effective healthcare delivery, especially in developing nations.

Advances in health science are most resoundingly felt in the third world: according to research published by Duke medicine in 2009, this population of nearly five billion people living in sub-par conditions is in a prime position to benefit from health science research because “…environmental factors an inadequacies in hygiene, economic development, and health-care access are the main causes of shortened life expectancies”, according to an article titled The role of academic health science systems in the transformation of medicine. People living in global poverty are at the mercy of the care available to them: the better we train and education the physicians responsible for their care, the more likely these people are to survive and thrive.

Advances in Health Science

From the perspective of a primary care physician, the best received research findings relate to everyday problems. Research into flu diagnosis and treatment, for example, is always welcomed in the front lines of medicine. To illustrate, research by Dr. Brouqui et al published in 2009 found that the absence of cough rejects the diagnosis of A/H1N1 infection in 100% of cases. Research like this helps inform physicians of rapid medical advancements in areas that matter immediately to them, and the aggregation of such knowledge doesn’t necessarily require expensive equipment or testing. The passage of this information, and indeed, its connection to other areas of health, is at the core of health science research.

The greatest application of health science is when a physician, no matter where he or she is located, can look their patient in the eye and say “You’re going to be OK.” – health science and the accompanying research gives this statement weight, and allows the physician to be confident in their ability to diagnose and treat whatever they may come across with informed and well-paced decision making.

 

I while ago I got a link to sign a petition against the IDSA lyme protocols. At the time I did not have the time and eventually it just got forgotten. I think in the end it got forgotten because the IDSA protocols never impacted my treatment. I disagree with them, but you tend to be more passionate about things that personally affect you. I was reading Lymelight’s blog and it reminded me of the forgotten petition so I made haste to complete it before I forgot again. To make up for my late submission I submitted another one for Eriksgirl. My other confession is that I submitted another petition for the astrolgist. I obviously had his email address, but I ended up with his home address when he threatened that he could find my personal info whether I gave it to him or not, and to quit being paranoid. To be on the up and up I did not think he wanted an email subscription of updates so I opted him out of that. Deep down Ron can be proud of signing this petition via proxy. ;-)

 

I have posted a few times before about marijuana. I came across this article the other day, and the example they used was the need for weed for MS tremors. Twice a day!  Before she was trapped at home and now suddenly she is free.  The whole story sounds implausible. Maybe the hit in the evening is because her tremors are keeping her awake? In the end this is exactly why I mostly do not support medical marijuana. There are ample prescription medications available to treat tremors. She is taking marijuana because she wants to take marijuana, and now she is just another pot head. To be fair this could just be another horribly written article that left out lots of information.  In the end I think most people using “medical marijuana” do not need it, and it is an abuse of the system.

As to the linked article I see no problem with their being additional restrictions on those who take highly controlled substances. I spent months not being able to drive after each seizure to prove that I was stable. If she, and the others, are in that bad of shape than they should probably not be driving. Or if they are not that bad choose a normal medication. Or take the bus.

 

For some reason I never posted my Lyme treatments. Here is the spreadsheet with various comments. The first doctor was a quack. I am shocked he has not seriously hurt someone. The next doctor never seemed to take my care that seriously and left me on inadequate medication for long periods. It peaked with him not knowing one of the drugs he prescribed negatively impacted male fertility. As always I recommend trackng symptoms and medication. For what it is worth here is a quick list:

Artemisinin
Azithromycin
B12 (cyanocobalamin) Injection
Biaxin XL (Clarithromycin)
Cholestyramine
Cipro (Ciprofloxacin)
Diflucan (Fluconazole)
Flagyl (Metronidazole)
IV Cleocin Phosphate/ Clindamycin
IV Levaquin/ Levofloxacin
IV Rocephin
IV Rocephin via MediPort
IV Vancomycin via MediPort (self infusing)
Levaquin/ Levofloxacin
Malarone
Minocin (Minocycline)
Septra DS
Tindamax
Ursodiol (Actigall)

© 2011 Erik's Multiple Sclerosis & Lyme Blog Suffusion theme by Sayontan Sinha